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| Name | Class |
|---|---|
| Société Francophone Nutrition Clinique et Métabolisme | OTHER |
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The SBS NEEDS Study is a qualitative transversal study aiming to describe and understand the needs and knowledge of patients with Chronic Intestinal Failure as well as the representations of their practitioners
Chronic Intestinal Failure (CIF) is the long-lasting reduction of gut function, below the minimum necessary for the absorption of macronutrients and/or water and electrolytes, such that intravenous supplementation is required to maintain health and/or growth. CIF is the rarest organ failure. Home parenteral nutrition (HPN) is the primary treatment for CIF.
Semi-structured interviews will be conducted with patients in two nutrition unit and specialized in the small bowel diseases in two French region. 20 situations will be included.
After analysing the data of the individual interviews, focus groups will be conducted with health professionals from an accredited home parenteral nutrition department.
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| Measure | Description | Time Frame |
|---|---|---|
| 20 semi-structured interviews | Qualitative data analysis - Theorical saturation | 12 months |
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Inclusion Criteria:
Exclusion Criteria:
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Men and women aged 18 and over, fulfilling the conditions of major Chronic Intestinal Failure (CIF) : "reduction of the intestinal functional mass below the minimum mass sufficient to ensure the absorption of nutrients to maintain nutritional status"
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