What Treatment Adherence for Home Parenteral Nutrition in Patients With Chronic Intestinal Failure ?
What Treatment Adherence for Home Parenteral Nutrition in Patients With Chronic Intestinal Failure ?
This observational, cross-sectionnal, multicentric study evaluates treatment adherence of home parenteral nutrition in patients with chronic intestinal failure.
Chronic intestinal failure (CIF) is a chronic disease and its main treatment is home parenteral nutrition. This disease is defined by a small bowel dysfunction preventing absorption of nutrients and water inputs. A " normal " oral diet is then insufficient, and must be supplied by an " artificial " parenteral nutrition. This treatment is administered at home, by a central veinous catheter, with varying volumes and frequencies.
The quality of life of patients treated by home parenteral nutrition is significatively altered .
The constraints linked to this treatment may make it difficult to follow. The patients can be lead to ask their doctor for a relief or a modification of this treatment during office visits, to improve their quality of life.
Poor treatment adherence concerns 25% of patients with chronic disease . It has never been assessed in France in CIF.
The goal of this study is to evaluate the treatment adherence for home parenteral nutrition in two of its components: negotiation during office visits, and compliance at home.
The negociation component will be assessed during an office visit with the help of forms, by the difference between " ideal " parenteral nutrition prescription proposed by prescriber and the " final " prescription, that the patient ultimately receives at the end of the office visit.
The compliance component will be assessed by a telephone interview, 8 weeks after the office visit.
Inclusion Criteria:
Exclusion Criteria: