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This project will develop and refine a shared decision making (SDM) intervention (decision aid tool) to improve and normalize high quality end of life discussions in the Emergency Department (ED) setting.
Develop a shared decision making (SDM) intervention informed by insights elicited from patients and clinicians to improve goals of care discussions.
The process of decision aid design involves: (1) review and synthesis of the evidence; (2) an analysis of usual practice through observation of clinical encounters; (3) development of an initial decision aid prototype; (4) field testing in the context of clinical care to gain insights on both intended and unintended effects of its use in practice to facilitate patient centered goals of care discussions; and (5) successive iterations of the decision aid until thematic saturation is reached and it is ready for testing in a clinical trial.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Shared decision aid assessment | Experimental | Patients will be selected to have a goals of care discussion with an emergency physician utilizing a pilot decision aid and will be asked for feedback to assist with refinement of the decision aid. |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Shared Decision Aid Assessment | Other | Provide feedback on a shared decision making tool to aid in discussion on goals of care in the emergency department |
|
| Measure | Description | Time Frame |
|---|---|---|
| Patient and physician feedback survey for tool development and iterative refinement | A debrief survey/open-ended questionnaire is filled out by the patient and his/her provider to collect feedback. This is used to refine this shared decision making (SDM) intervention in the Emergency Department (ED) setting. | 1 year |
| Measure | Description | Time Frame |
|---|---|---|
| Patient and physician satisfaction questionnaire | A satisfaction questionnaire is filled out by the patient and his/her provider following conversation on goals of care either with or without the SDM intervention. | 1 year |
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Inclusion:
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| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Laura Walker | Contact | 507-775-5607 | walker.laura@mayo.edu | |
| Derek VanMeter | Contact | 507-775-4732 | vameter.derek@mayo.edu |
| Name | Affiliation | Role |
|---|---|---|
| Laura E Walker | Mayo Clinic | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Mayo Clinic in Arizona | Not yet recruiting | Scottsdale | Arizona | 85259 | United States | |
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| Label | URL |
|---|---|
| Mayo Clinic Clinical Trials (best in chrome) | View source |
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| Mayo Clinic in Florida |
| Not yet recruiting |
| Jacksonville |
| Florida |
| 32224 |
| United States |
| Mayo Clinic in Rochester | Recruiting | Rochester | Minnesota | 55905 | United States |
|