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| ID | Type | Description | Link |
|---|---|---|---|
| 2017-A00486-47 | Other Identifier | ID-RCB number, ANSM |
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This study aims to determine factors related to diagnosis delay for patients with young onset dementia (first symptoms before 60 years old) who live in North of France.
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| Measure | Description | Time Frame |
|---|---|---|
| the delay between the diagnosis and the first symptomsIdentification of factors related with diagnosis delay | To determine the factors associated with diagnostic delay in young patients (early symptoms before age 60) with Alzheimer's disease or related degenerative disease (Fronto-temporal Lobar Degeneration , Lewy Body Dementia ) | 10 years |
| Measure | Description | Time Frame |
|---|---|---|
| Comparison of patient profiles followed at the CMRR-CNR-MAJ Lille and those who are not. | The different profiles are defined according to composite measures of socio-demographic type | 10 years |
| Comparison of patients characteristics followed at the CMRR-CNR-MAJ Lille and those who are not.Impact of the diagnosis on YOD |
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Inclusion Criteria:
As part of this study, patients will be considered:
As part of the survey, caregivers of patients meeting the above criteria and the following two will be recruited:
Exclusion Criteria:
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Patients with a diagnosis of Alzheimer disease, Lewy Bodies Dementia or FrontoTemporal Lobar Degeneration and their caregivers
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| Name | Affiliation | Role |
|---|---|---|
| Florence Pasquier, MD, PhD | University Hospital, Lille | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Hôpital Roger Salengro, CHRU | Lille | France |
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| ID | Term |
|---|---|
| D000544 | Alzheimer Disease |
| D020961 | Lewy Body Disease |
| D057174 | Frontotemporal Lobar Degeneration |
| ID | Term |
|---|---|
| D003704 | Dementia |
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
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The different characteristics are defined according to composite measures of socio-demographic type |
| 10 years |
| the percentage of patients who have had a lack of information about the disease and possible aids | Identification of medico-social issues taht have been encountered by YOD patients during the care | 10 years |
| the percentage of refusal or delay of treatment of certain medico-social aids by the competent authorities | Identification of medico-social issues taht have been encountered by YOD patients during the care | 10 years |
| D024801 |
| Tauopathies |
| D019636 | Neurodegenerative Diseases |
| D019965 | Neurocognitive Disorders |
| D001523 | Mental Disorders |
| D020734 | Parkinsonian Disorders |
| D001480 | Basal Ganglia Diseases |
| D009069 | Movement Disorders |
| D000080874 | Synucleinopathies |
| D057177 | TDP-43 Proteinopathies |
| D057165 | Proteostasis Deficiencies |
| D008659 | Metabolic Diseases |
| D009750 | Nutritional and Metabolic Diseases |