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| Name | Class |
|---|---|
| Alzheimer's Association | OTHER |
| The Association for Frontotemporal Degeneration | UNKNOWN |
| Illinois Department of Public Health | OTHER |
| National Institutes of Health (NIH) |
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This is a study on Internet-based video-practice speech and language therapy for persons with primary progressive aphasia (PPA), behavioral-variant frontotemporal dementia (bvFTD), or related conditions.
The purpose of this study is:
The study will involve 12 to 15 session over the course of 12 months. Some of these sessions will be in-person at the Northwestern Cognitive Neurology and Alzheimer's Disease Center (Chicago, IL), while others will take place over the Internet, using an online study portal.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Check-In group | Experimental | Subjects in the Check-In group will undergo three check-in sessions with the speech therapist. These sessions will happen remotely, via video-chat, and will last less than an hour. They will occur at 3-, 4-, and 5-months from the subject's enrollment date. |
|
| Control Arm | No Intervention | Subjects in the Control arm will not undergo three check-in sessions with the speech therapist. |
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Monthly Check-in Session | Behavioral | Subjects in the Check-In group will have an online session with a speech-language pathologist 3-, 4-, and 5-months from the subject's enrollment date. |
| Measure | Description | Time Frame |
|---|---|---|
| Assessment of Functional Communication Abilities | Functional Communication Abilities will be assessed through questionnaires about the participant's language and communication, neuropsychological testing, and speech and language therapy evaluations. | Change from baseline assessment at 2-months, 6-months and 12-months post-treatment |
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Inclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Emily J Rogalski, PhD | University of Chicago | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| University of Chicago | Chicago | Illinois | 60637 | United States |
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| ID | Term |
|---|---|
| D018888 | Aphasia, Primary Progressive |
| D057180 | Frontotemporal Dementia |
| D057178 | Primary Progressive Nonfluent Aphasia |
| D001037 | Aphasia |
| D057174 | Frontotemporal Lobar Degeneration |
| ID | Term |
|---|---|
| D003704 | Dementia |
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
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| NIH |
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| D013064 |
| Speech Disorders |
| D007806 | Language Disorders |
| D003147 | Communication Disorders |
| D019954 | Neurobehavioral Manifestations |
| D009461 | Neurologic Manifestations |
| D012816 | Signs and Symptoms |
| D013568 | Pathological Conditions, Signs and Symptoms |
| D019965 | Neurocognitive Disorders |
| D001523 | Mental Disorders |
| D057177 | TDP-43 Proteinopathies |
| D019636 | Neurodegenerative Diseases |
| D057165 | Proteostasis Deficiencies |
| D008659 | Metabolic Diseases |
| D009750 | Nutritional and Metabolic Diseases |