Feasibility and Acceptability of Amani

Feasibilty and Acceptability of Amani, a Virtual Reality Application for Adults With Sickle Cell Disease

Adults with sickle cell disease (SCD) experience severe pain, emotional distress, and social isolation that diminish their quality of life. This project will test Amani, a novel virtual reality supportive care intervention designed to improve coping skills and strengthen peer support. If feasible and acceptable, Amani offers an accessible digital supportive care intervention to improve psychological well-being and quality of life among individuals living with SCD.

Inclusion Criteria:

• Adults (≥ 18 years) who are diagnosed with sickle cell disease
• Primarily followed at the Massachusetts General Hospital (MGH) Sickle Cell Disease Center
• Have ability to comprehend and speak English given Amani is currently only available in English.

Exclusion Criteria:

• Have severe psychiatric (psychotic disorder, bipolar disorder) or cognitive impairment which the treating hematologist believes would preclude ability to participate in the clinical trial