A Survey for Patients and Caregivers Aiming to Understand and Improve the Care of Patients at High Risk of Transfer From Peritoneal Dialysis to Hemodialysis:

Understand, Plan and Improve Care and Wellbeing of Patients at High Risk of Transfer From Peritoneal Dialysis to Hemodialysis - Phase 2 (Survey)

Home dialysis is encouraged in Canada and peritoneal dialysis is the most common home dialysis method. However, many patients discontinue peritoneal dialysis, often transferring to hemodialysis. Despite the frequency of this transition, little is known about its impact on patients.

Overall, the UPLIFT-PD program aims to fill this gap by studying the transition from peritoneal dialysis to hemodialysis. The specific goal of this mixed methods sub-study is to conduct a national survey to ask patients and caregivers about priorities and preferences when they anticipate a transfer from peritoneal dialysis to hemodialysis. This survey will be co-created by patient-partners and dialysis experts.

Results from this survey will then be used in other phases of UPLIFT-PD program, detailed in other registrations, which will support people facing a transition from peritoneal dialysis to hemodialysis..

Inclusion Criteria:

1. Adult (≥18 years)

2. One of the following:

   • Patient who experienced a PD-to-HD transition in past 12 months
   • Patient currently receiving peritoneal dialysis
   • Caregiver (self-defined, including spouses, family members, or friends) of individuals meeting the above criteria

3. Able to read English or French

4. Able to complete the survey in paper or web-based format

5. Able to provide informed consent

Exclusion Criteria:

• Age <18 years
• Unable to provide consent