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| ID | Type | Description | Link |
|---|---|---|---|
| 203760_1 | Other Grant/Funding Number | CIHR |
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| Name | Class |
|---|---|
| Canadian Institutes of Health Research (CIHR) | OTHER_GOV |
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Home dialysis is encouraged in Canada and peritoneal dialysis is the most common home dialysis method. However, many patients discontinue peritoneal dialysis, often transferring to hemodialysis. Despite the frequency of this transition, little is known about its impact on patients.
Overall, the UPLIFT-PD program aims to fill this gap by studying the transition from peritoneal dialysis to hemodialysis. The specific goal of this mixed methods sub-study is to conduct a national survey to ask patients and caregivers about priorities and preferences when they anticipate a transfer from peritoneal dialysis to hemodialysis. This survey will be co-created by patient-partners and dialysis experts.
Results from this survey will then be used in other phases of UPLIFT-PD program, detailed in other registrations, which will support people facing a transition from peritoneal dialysis to hemodialysis..
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Survey Participants | Survey participants will include both patients (or their caregivers) having experienced a transition to hemodialysis in the past year or currently receiving peritoneal dialysis |
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| Measure | Description | Time Frame |
|---|---|---|
| Priorities and Challenges Related to PD-to-HD Transitions | Measured using Likert-scale responses assessing perceived importance of transition-related factors (e.g. preparedness, timing of discussions, vascular access planning, psychosocial impact). Likert-scale from 0 (lowest importance) to 9 (highest importance) | At survey completion (Baseline) |
| Measure | Description | Time Frame |
|---|---|---|
| Preferences for Clinical Scenarios Related to PD-to-HD Transitions | Assessed using a discrete choice experiment evaluating trade-offs between attributes such as duration on PD, risk of complications, and planned vs. unplanned HD transfer. | At survey completion (Baseline) |
| Perceptions of Successful Transition |
| Measure | Description | Time Frame |
|---|---|---|
| Qualitative Themes Related to Transition Experiences | Analysis of open-ended responses to identity key themes and concepts. | At survey completion (Baseline) |
Inclusion Criteria:
Adult (≥18 years)
One of the following:
Able to read English or French
Able to complete the survey in paper or web-based format
Able to provide informed consent
Exclusion Criteria:
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Adult patients with lived experience of peritoneal dialysis and transitions to hemodialysis, as well as caregivers of such patients, recruited from dialysis centers and patient communities across multiple centers.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Annie-Claire Nadeau-Fredette, MD MSc | Contact | 514-252-3400 | 6141 | ac.nadeau-fredette@umontreal.ca |
| Émilie Robitaille | Contact | 514-252-3400 | 5289 | emilie.robitaille.cemtl@ssss.gouv.qc.ca |
| Name | Affiliation | Role |
|---|---|---|
| Annie-Claire Nadeau-Fredette, MD MSc | CIUSSS de l'Est-de-l'Ile de Montréal | Principal Investigator |
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Considering the survey nature of the study and in compliance with our ethic board requirements
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Agreement with proposed definitions of successful PD-to-HD transitions based on care pathways. |
| At survey completion (Baseline) |