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| Name | Class |
|---|---|
| University of Gavle | OTHER |
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Multiple sclerosis (MS) is a chronic neurodegenerative disease and a leading cause of reduced workforce participation due to neurological illness in Western countries. Over the past 30 years, new treatments have reduced symptom burden, allowing patients to stay in the workforce longer. However, fatigue and cognitive impairments remain major barriers to work capacity. This project aims to preliminary examine the impact of cognitive function on work ability, and assess the role of neuropsychologists in multidisciplinary rehabilitation teams. It consists of a feasibility study evaluating the integration of neuropsychological interventions into teambased work-oriented rehabilitation. The specific research questions are:
Our findings aim to enhance work-oriented rehabilitation and provide a deeper understanding of how to support individuals with MS in maintaining employment and overall well-being
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Patients with multiple scleroris of working age | Patients with MS and of working age (18-65) referred to neuropsychological evaluation. |
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| Measure | Description | Time Frame |
|---|---|---|
| Work participation | Percentage of full-time work. 100 % full-time work and 0% is not working at all. | From baseline to 2-year follow-up |
| Hospital anxiety and depression scale | Self-assessment of anxiety and depression. Consists of two scales measuring the probability of having anxiety and depression respectively. Min score 0, max 21 for each scale. Higher scores indicate higher probability of anxiety/depression. | From baseline to 2-year follow-up |
| WHO-5 Well-Being Index | Overall rating of well-being. The WHO-5 score range is a raw score of 0-25, which is then multiplied by 4 to get a percentage score of 0-100. Higher score indicates higher well-being. | From baseline to 2-year follow-up |
| Brief index of job satisfaction | The Brief Index of Affective Job Satisfaction (BIAJS) has a score range of 1 to 5 for each of its four items, based on a 5-point Likert scale where 1 is "strongly disagree" and 5 is "strongly agree". The total BIAJS score is the sum of these four items, resulting in a possible range from 4 to 20, with higher scores indicating greater affective job satisfaction. | From baseline to 2-year follow-up |
| Measure | Description | Time Frame |
|---|---|---|
| Quantative work demands | Questions from the subscale "Quantitative demands" of the Copenhagen Psychosocial Questionnaire (COPSOQ-III) related to the demands of work. The COPSOQ-III uses Likert-like scales, and its items are coded with values of 0, 25, 50, 75, and 100 to achieve a 0-100 scale. Higher scores indicate more demands. | From baseline to 2-year follow-up |
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Inclusion Criteria:
Multiple sclerosis Age between 18-65 Refered to neuropsychological assessment at the Neurology departement at Gävle Hospital -
Exclusion Criteria:
Other diagnosis hindering work participation more than MS
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Patients of working age with MS in Region Gävleborg who are refered for a neuropsychological assessment and who are not suffering from other diagnosis which impact their work ability to a large extent.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Natascha Ekdahl | Contact | +4626278023 | natascha.ekdahl@regiongavleborg.se |
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Gävle hospital | Recruiting | Gävle | Sweden |
To comply with the conditions set by the ethical review board, individual participant data (IPD) cannot be shared with other researchers. However, aggregated data are available upon reasonable reques
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| ID | Term |
|---|---|
| D009103 | Multiple Sclerosis |
| ID | Term |
|---|---|
| D020278 | Demyelinating Autoimmune Diseases, CNS |
| D020274 | Autoimmune Diseases of the Nervous System |
| D009422 | Nervous System Diseases |
| D003711 | Demyelinating Diseases |
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| Can-Work-S | Three questions from a questionnaire developed to measure work-life balance after cancer. Each item ranges from 1 to 5 with higher scores indicating worse work-life balance. | From baseline to 2-year follow-up |
| D001327 | Autoimmune Diseases |
| D007154 | Immune System Diseases |