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| Name | Class |
|---|---|
| University of Gavle | OTHER |
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Multiple sclerosis (MS) is a chronic neurodegenerative disease and a leading cause of reduced workforce participation due to neurological illness in Western countries. Over the past 30 years, new treatments have reduced symptom burden, allowing patients to stay in the workforce longer. However, fatigue and cognitive impairments remain major barriers to work capacity. This project aims to examine factors important for work ability and well-being in persons with MS and cognitive impairments. The specific research questions are:
The findings from the study aim to enhance work-oriented rehabilitation and provide a deeper understanding of how to support individuals with MS in maintaining employment and overall well-being
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Patients with MS and of working age (18-65) who have been referred to neuropsychological evaluation. | Time of neuropsychological assessment from 5 years before until study start. |
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| Measure | Description | Time Frame |
|---|---|---|
| Work participation | Percentage of full-time work. 100 % full-time work and 0% is not working at all. | Baseline |
| Hospital anxiety and depression scale (HADS) | Self-assessment of anxiety and depression. Consists of two scales measuring the probability of having anxiety and depression respectively. Min score 0, max 21 for each scale. Higher scores indicate higher probability of anxiety/depression. | Baseline |
| WHO-5 Well-Being Index | Overall rating of well-being. The WHO-5 score range is a raw score of 0-25, which is then multiplied by 4 to get a percentage score of 0-100. Higher score indicates higher well-being. | Baseline |
| Brief index of job satisfaction (BIAJS) | The Brief Index of Affective Job Satisfaction (BIAJS) has a score range of 1 to 5 for each of its four items, based on a 5-point Likert scale where 1 is "strongly disagree" and 5 is "strongly agree". The total BIAJS score is the sum of these four items, resulting in a possible range from 4 to 20, with higher scores indicating greater affective job satisfaction. | Baseline |
| Measure | Description | Time Frame |
|---|---|---|
| Work-life balance | Questions from the subscale "Quantitative demands" of the Copenhagen Psychosocial Questionnaire (COPSOQ-III) related to the demands of work. The COPSOQ-III uses Likert-like scales, and its items are coded with values of 0, 25, 50, 75, and 100 to achieve a 0-100 scale. Higher scores indicate more demands. | Baseline |
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Inclusion Criteria:
Multiple sclerosis Age between 18-65 Performed a neuropsychological assessment at the Neurology department at Gävle Hospital during the last 5 years (counting from study start) -
Exclusion Criteria:
Other diagnosis hindering work participation more than MS
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Patients of working age with MS in Region Gävleborg who have performed a neuropsychological assessment during the 5 years prior to study start and who are not suffering from other diagnosis which impact their work ability to a large extent.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Natascha Ekdahl | Contact | +4626278023 | natascha.ekdahl@regiongavleborg.se |
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Gävle hospital | Gävle | Sweden |
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To comply with the conditions set by the ethical review board, individual participant data (IPD) cannot be shared with other researchers. However, aggregated data are available upon reasonable reques
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| ID | Term |
|---|---|
| D009103 | Multiple Sclerosis |
| ID | Term |
|---|---|
| D020278 | Demyelinating Autoimmune Diseases, CNS |
| D020274 | Autoimmune Diseases of the Nervous System |
| D009422 | Nervous System Diseases |
| D003711 | Demyelinating Diseases |
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| Can-Work-S |
Three questions from a questionnaire developed to measure work-life balance after cancer. Each item ranges from 1 to 5 with higher scores indicating worse work-life balance. |
| Baseline |
| D001327 | Autoimmune Diseases |
| D007154 | Immune System Diseases |