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| ID | Type | Description | Link |
|---|---|---|---|
| 2023/09-20 | Registry Identifier | Ethics Committee Approval Number: 2023/09-20-Tepecik Training and Research Hospital |
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| Name | Class |
|---|---|
| Tepecik Training and Research Hospital | OTHER |
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This observational study aims to examine the relationship between caregiver burden, psychological resilience, and sleep quality in individuals providing care for bedridden patients, particularly in the context of palliative care. In many cases, the care of bedridden patients in hospitals and at home is undertaken by family members. The caregiving process can be physically, emotionally, and financially demanding. Caregivers often face challenges such as irregular eating habits, chronic fatigue, body pain, difficulty concentrating, restlessness, insomnia, and even increased use of alcohol or medication. These burdens can also negatively impact their social relationships, work performance, and financial stability.
As caregiver burden increases, caregivers are more likely to experience sleep disorders, anxiety, depression, stress, and burnout. These issues not only affect the caregiver's quality of life but also reduce the quality of care provided to the patient. It is therefore crucial to assess the psychosocial needs of caregivers and to understand the factors that influence their ability to cope with caregiving demands.
Psychological resilience-defined as the ability to adapt to stress and recover from adversity-is believed to play a key role in coping with caregiver stress, though its relationship with caregiver burden remains unclear. This study will evaluate caregiver burden, sleep quality, and psychological resilience using validated questionnaires. Participants will be caregivers of patients currently hospitalized in our palliative care unit. After obtaining ethical approval, individuals who consent to participate will complete the questionnaires. The results will help inform future support strategies aimed at improving caregiver well-being and patient care quality.
This observational study is conducted to evaluate the relationship between caregiver burden, psychological resilience, and sleep quality among individuals providing care for bedridden patients in a hospital-based palliative care unit.
The study population will consist of caregivers (aged 18 and older) of patients hospitalized in the palliative care unit. After obtaining ethics committee approval, voluntary participants who provide informed consent will be asked to complete a series of validated self-report questionnaires, including:
The data will be collected through face-to-face interviews or self-administered paper questionnaires. Participants' sociodemographic characteristics will also be recorded. The study does not involve any interventions or experimental procedures.
Findings from this study may contribute to the development of targeted psychosocial interventions to support caregivers of functionally dependent patients and improve the overall quality of care.
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Caregiver Burden, Psychological Resilience, Sleep Quality | Other | Informal caregivers who provide daily care for bedridden patients are evaluated in this study. The exposure involves physical, emotional, and financial caregiving responsibilities such as assistance with feeding, mobility, and emotional support. The impact of caregiving on sleep quality and psychological resilience is assessed using validated questionnaires (Zarit Burden Interview, Pittsburgh Sleep Quality Index, Resilience Scale). |
| Measure | Description | Time Frame |
|---|---|---|
| Correlation between Zarit Burden Interview (ZBI, 19-item scale) and Adult Resilience Scale (ARS, 33-item scale) | at enrollment |
| Measure | Description | Time Frame |
|---|---|---|
| Correlation between Zarit Burden Interview (ZBI, 19-item scale) and Pittsburgh Sleep Quality Index (PSQI, 19-item scale) | At enrollment |
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Inclusion Criteria:
Exclusion Criteria:
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Informal caregivers of bedridden patients who are currently hospitalized in the palliative care unit of a tertiary care hospital.
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Tepecik Training and Research Hospital | Izmir | Turkey (Türkiye) |
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| ID | Term |
|---|---|
| D000084802 | Caregiver Burden |
| D007319 | Sleep Initiation and Maintenance Disorders |
| ID | Term |
|---|---|
| D013315 | Stress, Psychological |
| D001526 | Behavioral Symptoms |
| D001519 | Behavior |
| D020919 | Sleep Disorders, Intrinsic |
| D020920 | Dyssomnias |
| D012893 | Sleep Wake Disorders |
| D009422 | Nervous System Diseases |
| D001523 | Mental Disorders |
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