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Studies in the literature have measured the anxiety and depression levels of parents of children with spina bifida. Additionally, it has been reported that parents of children with non-neurogenic lower urinary tract dysfunction, such as nocturnal enuresis and overactive bladder, have increased levels of anxiety and depression. In this study, the investigators aim to evaluate, for the first time, the effect of urinary system symptoms and findings in children with spina bifida on the anxiety and depression levels of their parents.
Between January 2024 and December 2024, the demographic data of patients with spina bifida under follow-up, as well as the results of dimercaptosuccinic acid (DMSA) static renal scintigraphy, urinary ultrasonography (USG), and voiding cystourethrography (VCUG), which indicate upper urinary tract (UUT) damage, were recorded. Symptom scoring was performed on the primary caregiver of the child, and anxiety and depression scores were calculated. The Hospital Anxiety and Depression Scale (HADS) and the Beck Anxiety Inventory were used to assess these symptoms in the parents. The presence of renal scarring, hydronephrosis, or vesicoureteral reflux (VUR) in the DMSA was considered as UUT damage. Patients were divided into subgroups based on demographic data, UUT damage, history of febrile urinary tract infections (UTIs), incontinence, and the presence of motor deficits. These groups were then compared in terms of anxiety and depression scores.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Spina Bifida Group | Parents ( mother or father) have child with spina bifida |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Anxiety, Depression levels | Diagnostic Test | Parents of children with spina bifida will be filled out symptom scores regarding depression and anxiety levels. |
|
| Measure | Description | Time Frame |
|---|---|---|
| Anxiety Level- Hospital Anxiety Scale | For Anxiety Hospital Anxiety scale used In the Hospital Anxiety Score, the minimum score is 0, and the maximum score is 21. As the score increases, it indicates higher levels of anxiety. | Baseline |
| Depression Level | For Depression Hospital Depression scale used In the Hospital Depression Score, the minimum score is 0, and the maximum score is 21. As the score increases, it indicates higher levels of depression. | Baseline |
| Anxiety Level- BECK Scale | In the BECK Scale, the minimum score is 0, and the maximum score is 63. As the score increases, it indicates higher levels of pain. | Baseline |
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Inclusion Criteria:
- Having a child with spina bifida
Exclusion Criteria:
- Diagnosis of psychiatric illness
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Parents whom have a child with spina bifida
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| Name | Affiliation | Role |
|---|---|---|
| CAGRI A. SEKERCİ | MARMARA UNİVERSİTY SCHOOL OF MEDİCİNE DEPARTMENT OF UROLOGY | Study Director |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Marmara University School of Medicine Urology Department | Istanbul | Istanbul | 34854 | Turkey (Türkiye) |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 41847996 | Derived | Altuntas T, Imanli E, Ulker ND, Ozkan OC, Sekerci CA, Cam K, Tarcan T, Yucel S. Urinary Incontinence and Psychological Distress Among Parents of Children With Spina Bifida. Neurourol Urodyn. 2026 Apr;45(4):794-801. doi: 10.1002/nau.70271. Epub 2026 Mar 18. |
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| ID | Term |
|---|---|
| D016135 | Spinal Dysraphism |
| D001008 | Anxiety Disorders |
| D003863 | Depression |
| ID | Term |
|---|---|
| D009436 | Neural Tube Defects |
| D009421 | Nervous System Malformations |
| D009422 | Nervous System Diseases |
| D000013 | Congenital Abnormalities |
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| D009358 | Congenital, Hereditary, and Neonatal Diseases and Abnormalities |
| D001523 | Mental Disorders |
| D001526 | Behavioral Symptoms |
| D001519 | Behavior |