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Adolescents and young adults with rare neurodevelopmental disorders are at risk of developing psychiatric pathologies during the transition to adulthood. Loneliness and lack of social relationships can lead to anxiety and depression in adolescents and young adults with rare neurodevelopmental disorders. Anxiety and depression are major risk factors for the transition to psychiatric symptoms in adulthood. The improvement of social skills and the positive evolution of social relationships in adolescents and young adults with rare neurodevelopmental disorders can lead to a reduction in the risk factors for anxiety and depression. It therefore seems essential to evaluate the evolution of social skills in this population of young adults under the care of the social skills program, PEERS, in France to assess the overall benefit of the program, particularly in this population of young people with rare neurodevelopmental disorders.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Patient | Inclusion criteria:
Non-inclusion criteria :
| ||
| Family member or friend | Inclusion criteria:
Non-inclusion criteria : - Opposition to participation in the study |
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| Measure | Description | Time Frame |
|---|---|---|
| Assessment of social skills in adolescents and young adults with rare neurodevelopmental diseases participating in the social skills program | Quality of Play Questionnaire-Adolescent (QPQ-A) (QSQP in French) | 2023 - 2025 |
| Assessment of social skills in adolescents and young adults with rare neurodevelopmental diseases | Friendship Quality Scale (FQS) | 2023 - 2025 |
| Assessment of social skills in adolescents and young adults with rare neurodevelopmental diseases | Social Anxiety Scale for Adolescent (SAS-A) | 2023 - 2025 |
| Assessment of social skills in adolescents and young adults with rare neurodevelopmental diseases | Loneliness and Social Dissatisfaction Scale (L&SD) | 2023 - 2025 |
| Assessment of social skills in adolescents and young adults with rare neurodevelopmental diseases | Test of Adolescent Social Skills Knowledge (TASSK) | 2023 - 2025 |
| Assessment of social skills in adolescents and young adults with rare neurodevelopmental diseases | Self-Assessment of Conversational Skills (AHC) | 2023 - 2025 |
| Assessment of social skills in adolescents and young adults with rare neurodevelopmental diseases | Beck Youth Inventories (BYI) | 2023 - 2025 |
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Inclusion criteria:
Non-inclusion criteria :
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The study will focus on data from 40 patients with rare neurodevelopmental disorders and their 40 relatives/friends.
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Necker - Enfants Malades Hospital | Paris | Île-de-France Region | 75015 | France |
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| ID | Term |
|---|---|
| D065886 | Neurodevelopmental Disorders |
| D035583 | Rare Diseases |
| ID | Term |
|---|---|
| D001523 | Mental Disorders |
| D020969 | Disease Attributes |
| D010335 | Pathologic Processes |
| D013568 | Pathological Conditions, Signs and Symptoms |
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