the Challenges of Young Adults With Cancer

AYANDRA Study: Addressing Youth and Adolescent Needs in Development, Research, and Advocacy

The study aims to describe unmet needs of Adolescent & Young Adults (AYA) with gastrointestinal and breast cancers in relation to: a) quality of life, b) education, c) finances and Insurance, and d) childbearing and parenting in Europe

An electronic online questionnaire was developed addressing four main areas: a) quality of life, b) education, c) finances and Insurance, and d) childbearing and parenting. In brief, the first part of the questionnaire will aim to examine the demographic characteristics of the participants, such as their nationality, gender, age at diagnosis, actual age, and level of education, followed by their diagnosis or condition. No clinical data will be collected other than these features. Then, each domain will include 10 questions (multiple choice questions, ranking questions and 7-point Likert scale questions) and investigate the unmet needs in AYA with gastrointestinal and breast cancers.

Inclusion Criteria:

• Age: 18 years old at survey participation, as long as aged 13-39 years old at diagnois;
• Gastrointestinal cancer (colorectal, gastric, pancreatic) or breast cancer.

Exclusion Criteria:

• Age: 18 years old at survey participation;
• Patients 13 - 39 years old at diagnosis;
• Hematologic malignancies or different cancers.