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| ID | Type | Description | Link |
|---|---|---|---|
| 1R01AG072569 | U.S. NIH Grant/Contract | View source |
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| Name | Class |
|---|---|
| National Institute on Aging (NIA) | NIH |
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The goal of this observational study is to understand how contextual, individual-level, and cultural factors influence the daily and long-term well-being of caregivers of relatives with memory problems or dementia. The study focuses on caregivers from the Hispanic and Latino community. The main questions it aims to answer are:
Participants will:
All the study information and surveys can be completed in English or Spanish based on the participant's preference.
Hispanic and Latino/a/x/e (H&L) family caregivers of older relatives living with memory problems or dementia often experience poor mental health due to the increased stress associated with caregiving. The purpose of this study is to examine how contextual, individual-level, and cultural factors influence daily and long-term patterns of depression and anxiety symptoms among H&L caregivers. The investigators will collect data at multiple time points to understand their daily experiences and possible relationships among these factors.
After initial contact, potential participants will complete two eligibility surveys to determine if they are a good fit for the study. If eligible, they will receive a study information sheet outlining all procedures, risks, and benefits.
The study will consist of:
The results from this study will inform a dynamic framework of H&L caregiver mental health by identifying modifiable intervention targets associated with resilience over time. This study represents a critical step forward in developing effective, culturally sensitive interventions to support the health and well-being of H&L caregivers, who are often under-supported and face significant challenges in their caregiving role.
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| Measure | Description | Time Frame |
|---|---|---|
| Daily Depression Symptom Experience | Patient-Reported Outcomes Measurement Information System (PROMIS) Emotional Distress-Depression Short Form, a 4-item scale measuring common symptoms associated with depression. Measures common symptoms associated with depression 4-item Scale 1-5 Likert Scale with 1 indicating "Never" and 5 indicating "Always" Scores range from 4 to 20 Higher scores indicate higher levels of depressive symptoms | 63 days |
| Daily Anxiety Symptom Experience | Patient-Reported Outcomes Measurement Information System (PROMIS) Emotional Distress-Anxiety Short Form, a 4-item scale measuring common symptoms associated with anxiety. Measures common symptoms associated with anxiety 4-item Scale 1-5 Likert Scale with 1 indicating "Never" and 5 indicating "Always" Scores range from 4 to 20 Higher scores indicate higher levels of anxiety symptoms | 63 days |
| Depression | Patient Health Questionnaire-9 (PHQ-9), a 9-item scale for screening, diagnosing, monitoring and measuring the severity of depression. 9-item Scale 0-3 Likert Scale with 0 indicating "Not at all" and 3 indicating nearly every day" Scores range from 0 to 27 Scores 0 - 4 = Minimal Depression 5 - 9 = Mild Depression 10 - 14 = Moderate Depression 15 - 19 = Moderate Severe Depression 20 - 27 = Severe Depression | 12 months |
| Anxiety | General Anxiety Disorder-7 (GAD-7), a 7-item scale for screening, diagnosing, monitoring and measuring the severity of anxiety. 7-item Scale 0-3 Likert Scale with 0 indicating "Not at all" and 3 indicating nearly every day" Scores range from 0 to 21 Scores 0 - 4 = Minimal Anxiety 5 - 9 = Mild Anxiety 10 - 14 = Moderate Anxiety >15 = Severe Anxiety | 12 months |
| Resilience | Resilience Scale for Adults: a 33-item scale measuring personal competence, social competence, personal structure, family coherence, and social support. 14-item scale with 3 subscales (Perception of self, planned future, structured style) 1-7 Likert Scale with 1 indicating "Not true at all" and 7 indicating "Very true" Higher scores indicate higher levels of resilience in the indicated subcategory |
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Inclusion Criteria:
Exclusion Criteria:
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Caregivers of older relatives living with memory problems or dementia who are 18 years or older and Identify as Hispanic or Latino/a/x/e,
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| Name | Affiliation | Role |
|---|---|---|
| Frank Puga, PhD | Univeristy of Alabama at Birmingham | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| The University of Alabama at Birmingham | Birmingham | Alabama | 35233 | United States |
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| ID | Term |
|---|---|
| D000084802 | Caregiver Burden |
| D000092862 | Psychological Well-Being |
| D013315 | Stress, Psychological |
| D003863 | Depression |
| D001008 | Anxiety Disorders |
| ID | Term |
|---|---|
| D001526 | Behavioral Symptoms |
| D001519 | Behavior |
| D010549 | Personal Satisfaction |
| D001523 | Mental Disorders |
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| 12 months |
| Health Related Quality of Life | Patient-Reported Outcomes Measurement Information System (PROMIS) Global Health: 10 item scale measuring global health-related quality of life (HRQOL) across 2 domains: physical and mental health. 10-item Scale 9 Items use 0 to 4 Likert Scale Item 10: 0 to 10 Likert Scale that is recoded to five categories (0 = 1; 1-3 = 2; 4-6 = 3; 7-9 = 4; 10 = 5) Scores range from 0 to 41 Higher scores indicate better overall mental and physical health | 12 months |