Family Caregiver Online Survey (Dementia and Swallowing Difficulties)

Influence of Swallowing Impairment on Burden Among Caregivers of Persons With Alzheimer's Disease and Related Dementias

The Family Caregiver Survey is a one-time, 30-minute, online survey for people living with and caring for a family member with dementia. The goal of this research is to explore the needs of family caregivers, specifically when it comes to managing swallowing difficulties (dysphagia).

This research aims to increase our understanding of dysphagia-related caregiver burden and inform the development of a comprehensive dysphagia intervention, one that promotes the health and quality of life of both the caregiver and the person with dementia.

Aim 1. Quantify dysphagia's contribution to burden among family caregivers of persons with dementia across the disease trajectory to identify when may be best to intervene.

Aim 2. Characterize the moderating effects of caregiver readiness and support on dysphagia-related burden and care recipient quality of life to identify what are the most appropriate intervention targets.

Inclusion Criteria:

• Be a caregiver for a family member (or chosen family member) with dementia
• Have been caregiving for at least 2 months
• Live at home with the care recipient
• Not be paid for the care provided
• Be over the age of 18
• Live in the US

Exclusion Criteria:

• Not be a caregiver for a family member (or chosen family member) with dementia
• Have been caregiving for less than 2 months
• Not live at home with the care recipient
• Be paid for the care provided
• Be under the age of 18
• Live outside in the US