Impact of Swallowing Impairment on Individuals With Parkinson Disease

Incorporating the Psychological Consequences of Dysphagia Into Swallowing Care: A Preliminary Investigation

In this online study, investigators will explore the psychosocial burdens of swallowing difficulties in people with Parkinson's Disease. This study is completely virtual, so you can participate from wherever you live in the United States. Participation requires you to complete a one-hour Zoom interview and a brief questionnaire. You will be compensated with a $25 Walmart gift card. To learn more, please use the "send email" feature. Thank you!

This is a mixed methods study. The investigators will collect qualitative data from participants by conducting 1-2 hour semi-structured interviews on Zoom. The interview questions are designed to systemically inquire about patient experiences, affective reactions, coping strategies, social support, self-identity issues, and treatment experiences. The investigators will collect quantitative data by asking participants to complete The Brief Illness Perception Questionnaire. The data will be analyzed using a comprehensive stress and coping model, which has not been done previously in the field. The investigators hope to discover themes about psychosocial burdens and related coping mechanisms.

Inclusion Criteria:

• Participants must currently have oropharyngeal dysphagia and Parkinson Disease
• Participants must be at least 18 years of age
• Participants must speak English.

Exclusion Criteria:

• Participants whose receptive and expressive language skills will not allow them to participate in one-on-one interviews