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| Name | Class |
|---|---|
| Bispebjerg Hospital | OTHER |
| Herlev and Gentofte Hospital | OTHER |
| HMW Health and Communication | UNKNOWN |
| National Research Centre for the Working Environment, Denmark |
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Mental health problems are rising among children and adolescents. This may not only impact the child's level of daily functioning but also close family members. Informal caregiving is defined as unpaid care for a sick, disabled, or other closely related person. Providing long-term informal care has been associated with detrimental stress-related outcomes, and being simultaneously active in the labor market has been highlighted as an increased burden for the caregiver. Workplaces are poorly suited for dealing with private stressors despite their potential negative consequences for the caregiver's job status and health. There is a need for improving understanding of how long-term informal caregiving impacts job and health outcomes, as well as for measures minimizing potential negative consequences among at-risk occupational groups.
This Danish nationwide observational cohort study examines the associations between employees being a primary informal caregiver for a child or adolescent with mental health problems and the employees' occupational and health outcomes. In addition, we seek to identify modifying psychosocial risk factors at work as well as at-risk occupational groups. The study relies on pre-existing longitudinal data extracted from Danish national registers, including highly reliable information on occupational status, birth information, residence, public transfer payments, income, psychiatric treatment and services, treatment for substance abuse, psychotropic prescription drugs redeemed, as well as background information. In Denmark, all citizens are assigned with a unique identification number enabling merging of national register data included. Caregiver-child relationships are established based on merging of data from birth and household registers. In this study, register data are further merged with information on psychosocial work environment based on national survey data. All data are located at Statistics Denmark, and accessed and analyzed via a logged, secured platform, The Danish Occupational Cohort (DOC*X) (www.DOC-X.dk). Exposed employees are compared to a reference group of employees without mental health problems at the familiy level matched according to age group, gender (female/male), and socio-occupational status.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Danish citizens | All citizens aged 0-25 years and all adults aged 18-67 years residing in Denmark in the period from 2000 to 2008. |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Primary informal caregiver at work. | Other | Employees becoming a primary informal caregiver for a child or an adolescent with mental health problems in the period from 2000 to 2018. |
| Measure | Description | Time Frame |
|---|---|---|
| Personal gross income (Level of analysis: primary informal caregiver) | Personal gross income is analyzed as series of annual statuses. | Up to 10 years of follow-up. |
| Employment (Level of analysis: primary informal caregiver). | Employment is analyzed as series of annual statuses (i.e., number of weeks employed within each year during follow-up). | Up to 10 years of follow-up. |
| Long-term sickness absence (Level of analysis: primary informal caregiver). | Long-term sickness absence is analyzed as time-to-event from baseline on the week scale. | Up to 10 years of follow-up. |
| Mental health (Level of analysis: primary informal caregiver). | Mental health is analyzed as time-to-event from baseline on the week scale whichever comes first: redeemed psychotropic drug prescriptions, treatment for substance abuse or psychiatric hospital services. | Up to 10 years of follow-up. |
| Measure | Description | Time Frame |
|---|---|---|
| Moderation of potential associations by psychosocial work environment (Level of analysis: primary informal caregiver) | Moderation of potential association by psychosocial work environment is based on age- and sex-specific job-exposure matrices (JEM). | JEMs were composed of national survey data collected in 2000 and 2005. |
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Inclusion Criteria:
Exclusion Criteria:
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This is a nationalwide register-based study of occupational and mental health outcomes of all adult caregivers to children with and without mental health problems.
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| Name | Affiliation | Role |
|---|---|---|
| Johan H Jensen, PhD | Team Working Life Denmark | Principal Investigator |
| Johan H Jensen, PhD | Occupational and Environmental Medicine, Copenhagen University Hospital - Bispebjerg & Frederiksberg | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Team Working Life Denmark | Valby | 2500 | Denmark |
Statistics Denmark's extensive collections of registers contain a significant potential for research and analysis.
In order to use this research and analysis potential in accordance with the current register legislation and Statistics Denmark's data confidentiality principles, Statistics Denmark has established special micro-data schemes (Research Scheme, Authority Scheme and Legislative Model).
Through the micro-data schemes, microdata (i.e. individual/single company data) is made available for specific research, investigation and analysis tasks for authorised research/analysis environments. Foreign research/analysis environments cannot be authorised for the scheme, but under certain conditions, foreign users can access data.
Further information: https://www.dst.dk/en/TilSalg/Forskningsservice/Dataadgang
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| ID | Term |
|---|---|
| D000073397 | Occupational Stress |
| ID | Term |
|---|---|
| D009784 | Occupational Diseases |
| D013315 | Stress, Psychological |
| D001526 | Behavioral Symptoms |
| D001519 | Behavior |
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| OTHER_GOV |
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| Moderation of potential associations by occupational group (Level of analysis: primary informal caregiver). |
Moderation by occupational group is based on DISCO-88 codes (International Standard Classification of Occupation, Danish version 1988). |
| Annual data in the period between 2000 and 2018. |