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This study will sample older Black adults to test their knowledge and opinions of hospice.
Short stays in hospice strain the Medicare system. Black adults over age 65 are one of the fastest growing groups in the US. Despite greater disease burden than their White peers, older Black adults are less likely to enroll in hospice. Misconceptions about hospice and mistrust may contribute to this disparity. The research will seek to understand older Black adults' decision-making processes around hospice. The PtDA is a tool to assist in this decision-making process. The influence of this tool will be measured as well. The sample of older Black adults will represent the national population. The research will explore various subgroups, which previous research has been unable to address. This study will use four validated survey batteries. About 200 of the 400 participants will also review the decision aid. These adults will complete a second survey. About 20 of these adults will also complete an interview about the decision aid. Through the surveys and interviews, this research will explore barriers to hospice usage for older Black adults.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Intervention | Experimental | 200 participants reviewed the PtDA decision tool for education on hospice care and subsequently completed a second survey which was identical to the first. |
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| Interview | Other | 20 of the 200 Intervention participants will complete an interview using qualitative methods surrounding the topic of hospice care and the PtDA. |
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| Control | No Intervention | 200 of the 400 participants completed two identical surveys one month apart but did NOT review the PtDA decision tool prior to completing the second survey timepoint. Instead, these participants reviewed an 8-page attention control activity booklet. These participants are used as a control group in assessing any change in knowledge or opinions of hospice after the intervention group reviewed the PtDA. |
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| IDECIDE-HOSPICE | Other | 12-pg educational booklet detailing information about hospice including what hospice is, why someone would use hospice, who pays for hospice, and where hospice services are delivered |
| Measure | Description | Time Frame |
|---|---|---|
| Hospice Knowledge | assessed using 23-item hospice knowledge survey | June 2023 through September 2023 |
| Hospice Beliefs and Attitudes | measured using 8-item Hospice Beliefs and Attitudes Scale (HBAS) | June 2023 through September 2023 |
| Self-Efficacy | assessed using 11-item Decision Self-Efficacy Scale (DSE) | June 2023 through September 2023 |
| Measure | Description | Time Frame |
|---|---|---|
| Medical Mistrust | measured using 17-item Medical Mistrust Index (MMI) | June 2023 through September 2023 |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Channing E Tate, PhD, MPH | University of Colorado School of Medicine | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| University of Colorado Denver | Anschutz Medical Campus | Aurora | Colorado | 80045 | United States |
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| Type | Includes Protocol | Includes SAP | Includes ICF | Document Label | Document Date | Document Uploaded Date | Document File Name |
|---|---|---|---|---|---|---|---|
| Prot_SAP | Yes | Yes | No | Study Protocol and Statistical Analysis Plan | Mar 21, 2023 | Oct 31, 2023 | Prot_SAP_000.pdf |
| ICF | No | No | Yes | Informed Consent Form | Jun 1, 2023 | Oct 31, 2023 | ICF_001.pdf |
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| ID | Term |
|---|---|
| D001519 | Behavior |
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