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| ID | Type | Description | Link |
|---|---|---|---|
| 2024-A00485-42 | Other Identifier | ID RCB |
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The goal of this descriptive observational study is to evaluate the preference of French adult patients followed in the context of a oncological disease, regarding the choice of the preferred healthcare professional to discuss advance care planning.
To this end, voluntary participants will be asked to indicate their preferences by answering a self-questionnaire available in electronic or paper format.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| French adult patients followed in the context of a oncological disease, | French-speaking adult patients willing to participate in this study. Patients being treated for oncological disease, in a curative, palliative, or remission phase. |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Self-questionnaire | Other | Provision of a self-questionnaire in digital or paper format for the patient. The patient will be asked to indicate their preferences regarding the primary and secondary objectives of the study. |
| Measure | Description | Time Frame |
|---|---|---|
| Determining the healthcare professional preferred by cancer patients to talk about advance care planning | Hierarchical classification of healthcare professionals preferred by the patient via a self-questionnaire | Six months |
| Measure | Description | Time Frame |
|---|---|---|
| Determining cancer patients' second choice of healthcare professional to talk about advance care planning | Hierarchical classification of health professionals preferred as second choice via a self-questionnaire | Six months |
| Evaluation of patient preferences regarding advance care planning, concerning the form, the moment it should be carried out, whether or not they wish to be accompanied by a relative, and the benefit of systematization |
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Inclusion Criteria :
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The source population corresponds to the French-speaking population of the Grenoble metropole area, followed in the context of cancer and treated by community medicine and/or healthcare structures.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Jérémy Lascaux, Master | Contact | 0630865262 | lascaux.jeremy@hotmail.fr |
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| CHU Grenoble Alpes | Recruiting | Grenoble | France |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 28884703 | Background | Rietjens JAC, Sudore RL, Connolly M, van Delden JJ, Drickamer MA, Droger M, van der Heide A, Heyland DK, Houttekier D, Janssen DJA, Orsi L, Payne S, Seymour J, Jox RJ, Korfage IJ; European Association for Palliative Care. Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care. Lancet Oncol. 2017 Sep;18(9):e543-e551. doi: 10.1016/S1470-2045(17)30582-X. | |
| 24651708 |
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| ID | Term |
|---|---|
| D057240 | Patient Preference |
| ID | Term |
|---|---|
| D017060 | Patient Satisfaction |
| D000074822 | Treatment Adherence and Compliance |
| D015438 | Health Behavior |
| D001519 | Behavior |
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Percentage for each response to the questions relating to the modalities of carrying out the interview regarding advance care planning; the most relevant time to discuss advance care planning; the patient's wish to be accompanied or not by a relative at the time of this interview; and the patient's opinion on the relevance of systematically carrying out this interview. |
| Six months |
| Background |
| Brinkman-Stoppelenburg A, Rietjens JA, van der Heide A. The effects of advance care planning on end-of-life care: a systematic review. Palliat Med. 2014 Sep;28(8):1000-25. doi: 10.1177/0269216314526272. Epub 2014 Mar 20. |
| 30518345 | Background | Peck V, Valiani S, Tanuseputro P, Mulpuru S, Kyeremanteng K, Fitzgibbon E, Forster A, Kobewka D. Advance care planning after hospital discharge: qualitative analysis of facilitators and barriers from patient interviews. BMC Palliat Care. 2018 Dec 5;17(1):127. doi: 10.1186/s12904-018-0379-0. |
| 32282265 | Background | Kubi B, Istl AC, Lee KT, Conca-Cheng A, Johnston FM. Advance Care Planning in Cancer: Patient Preferences for Personnel and Timing. JCO Oncol Pract. 2020 Sep;16(9):e875-e883. doi: 10.1200/JOP.19.00367. Epub 2020 Apr 13. |