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| ID | Type | Description | Link |
|---|---|---|---|
| ID-RCB | Other Identifier | 2022-A02147-36 |
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The question of the end of life is a major public health issue. In the field of palliative care, the notion of anticipation is central for people with a serious and progressive illness. Indeed, an important consideration for general practitioners is the need to anticipate the disease's evolution and the uncomfortable symptoms (physical or psychological) the patient is likely to experience. This approach aims to relieve the patient without delay and thus improve comfort to ensure an acceptable quality of life for patients and their families. Even if the usefulness of anticipatory prescribing seems obvious, their use is not generalized to all palliative care patients. Caregivers are confronted with obstacles to the implementation of these prescriptions, particularly with regard to the relationship with the patient. It can then be assumed that patients' experiences and perceptions may influence symptom management and the use of anticipatory prescriptions. It seems essential to explore this subject. For this purpose, the investigator will carry out a qualitative study based on individual semi-structured interviews with palliative care patients.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Palliative care patients |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Individual semi-structured interviews | Behavioral | After information and written consent, the investigator will interview the participants through a semi-structured individual interview (conducted by an interview guide). The interview is expected to last 45 minutes (variable depending on the subject). It will be recorded by dictaphone, respecting the anonymity of the participant throughout the interview. The subject's participation will end after the interview. |
| Measure | Description | Time Frame |
|---|---|---|
| The primary outcome is patient views on the use of anticipatory prescribing. | The interview consists in exploring the participants' experiences (feelings, representations), expectations and difficulties concerning the use of anticipatory prescribing. Interviews will be audio recorded. The verbatim will be transcribed for qualitative analysis by inductive thematic type, in order to bring out the main ideas and hypotheses. | The outcome will be collected at Day 1-End of study visit |
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Inclusion Criteria:
Exclusion Criteria:
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The study population concerns patients in palliative situation, either hospitalized in palliative care unit or followed at home by the Mobile Palliative Care Team. The number of subjects required is estimated at a minimum of 15 participants (depend on data saturation)
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Manon JULLIAN | Contact | 4 78 07 30 91 | +33 | manonjullian@hotmail.fr |
| Julien TRAUTMANN, MD | Contact | 4 78 07 31 38 | +33 | jtrautmann@ch-givors.fr |
| Name | Affiliation | Role |
|---|---|---|
| Manon JULLIAN | Multidisciplinary medicine and palliative care department | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Givors Hospital Center - Multidisciplinary medicine and palliative care department | Recruiting | Givors | 69700 | France |
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| ID | Term |
|---|---|
| D003643 | Death |
| ID | Term |
|---|---|
| D010335 | Pathologic Processes |
| D013568 | Pathological Conditions, Signs and Symptoms |
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