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| Name | Class |
|---|---|
| Institut Paoli-Calmettes | OTHER |
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This project aims to document and analyse - with a three-fold anthropological, psychosocial and economical approach - the consequences of the geographical distance from mainland France on the alloSCT on both patients, their caregivers and the healthcare system. It is organised in 3 working packages (WP).
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| patients who accept Allogeneic Hematopoietic Stem Cell Transplantation (alloH SCT) |
| ||
| patients who did not accept Allogeneic Hematopoietic Stem Cell Transplantation (alloH SCT) |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| questionnaire | Other |
|
|
| Measure | Description | Time Frame |
|---|---|---|
| Quality of life Functional Assessment of Cancer Therapy - Bone Marrow Transplantation questionnaire. (FACT-BMT questionnaire) | 24 months |
| Measure | Description | Time Frame |
|---|---|---|
| satisfaction with decision questionnaire | 24 months | |
| decision regret scale | 24 months | |
| fear of recurrence questionnaire |
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Inclusion Criteria:
Exclusion Criteria:
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Patients diagnosed with myeloid acute leukemia, lymphoid acute leukemia, non-hodgkin lymphoma, Hodgkin disease, or myelodysplasic syndrome candidate to an allogeneic hematopoietic stem cell transplantation in mainland
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Lucie AUZANNEAU | Contact | 0262359949 | +262 | lucie.auzanneau@chu-reunion.fr |
| Patricia MARINO | Contact | 04.91.22.35.02 | +33 | patricia.marino@inserm.fr |
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| CHU de la Réunion | Saint-Pierre | 97448 | France |
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| 24 months |
| preferences of patients questionnaire | 24 months |
| cost of treatment | impact on patients and caregivers; impact on society | 24 months |
| ID | Term |
|---|---|
| D011795 | Surveys and Questionnaires |
| ID | Term |
|---|---|
| D003625 | Data Collection |
| D004812 | Epidemiologic Methods |
| D008919 | Investigative Techniques |
| D017531 | Health Care Evaluation Mechanisms |
| D011787 | Quality of Health Care |
| D017530 | Health Care Quality, Access, and Evaluation |
| D011634 | Public Health |
| D004778 | Environment and Public Health |
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