Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| Name | Class |
|---|---|
| NF Midwest | UNKNOWN |
Not provided
Not provided
Not provided
Not provided
This is an open trial of the UCLA PEERS protocol delivered via Telehealth with teens with neurofibromatosis type 1 whose parents report that they have difficulty making and keeping friends.
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Treatment Group | Experimental | Participation in 16 week telehealth administration of the PEERS protocol for teens (parallel teen and parent/caregiver groups) |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| PEERS | Behavioral | 16 week telehealth intervention; parallel teen and parent/caregiver groups; 90 minutes each week. |
|
| Measure | Description | Time Frame |
|---|---|---|
| Social Skills Improvement System - SEL (SSIS-SEL; Gresham & Elliot, 2017) | Parental report of social skills (SSIS-SEL Total Score; Mean 100, SD 15; Higher scores mean stronger social functioning | within four weeks of PEERS completion |
| Test of Adolescent Social SKills (TASSK: Laugeson & Frankel, 2010) | Questionnaire completed by teen participants; measures knowledge of the PEERS intervention concepts (raw total score; higher score means stronger functioning) | within four weeks of PEERS completion |
| Measure | Description | Time Frame |
|---|---|---|
| Social Responsiveness Scale (SRS; Constantino, 2005) | Questionnaire completed by caregivers on social function and autism symptoms (SRS Total Score; Mean 50, SD 10; higher scores mean greater difficulties | within four weeks of PEERS completion |
Not provided
Inclusion Criteria:
Exclusion Criteria:
Not provided
Not provided
Not provided
Not provided
Not provided
| Name | Affiliation | Role |
|---|---|---|
| Danielle Glad, M.S. | University of Wisconsin, Milwaukee | Study Director |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| University of Wisconsin-Milwaukee | Milwaukee | Wisconsin | 53201 | United States |
Deidentified data will be available upon request to qualitied investigators.
Available following publication of the research findings
Contact the PI (bklein@uwm.edu)
Not provided
Not provided
| ID | Term |
|---|---|
| D009456 | Neurofibromatosis 1 |
| D066107 | Social Skills |
| ID | Term |
|---|---|
| D017253 | Neurofibromatoses |
| D009455 | Neurofibroma |
| D018317 | Nerve Sheath Neoplasms |
| D009380 | Neoplasms, Nerve Tissue |
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| D009370 |
| Neoplasms by Histologic Type |
| D009369 | Neoplasms |
| D009386 | Neoplastic Syndromes, Hereditary |
| D020752 | Neurocutaneous Syndromes |
| D009422 | Nervous System Diseases |
| D020271 | Heredodegenerative Disorders, Nervous System |
| D019636 | Neurodegenerative Diseases |
| D010523 | Peripheral Nervous System Diseases |
| D009468 | Neuromuscular Diseases |
| D030342 | Genetic Diseases, Inborn |
| D009358 | Congenital, Hereditary, and Neonatal Diseases and Abnormalities |
| D012919 | Social Behavior |
| D001519 | Behavior |