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| Name | Class |
|---|---|
| University of Oulu | OTHER |
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Several web portals for patients are available, but an assessment of their performance is scarce. This is of particular interest among candidates for kidney living donation. A crucial aspect of living donation is to provide standardized information about the risks of the procedure. In 2019 it was launched a personalized digital care path for kidney living candidates, which contains information about the donation process and facilitates the communication between clinicians, transplant coordinators, and patients, enabling telemedicine.
We aim to investigate living donor candidates' experience with the Health Village web portal and the digital care path for living donor candidates. The secondary aim is to investigate their attitude of living donor candidates to eHealth services.
Background. Several web portals for kidney patients are available, but an assessment of their performance is scarce. This is of particular interest among candidates for kidney living donation. A crucial aspect of living donation is to provide standardized information about the risks of the procedure. In Finland, the web portal Health Village contains general information about kidney diseases. In 2019 it was launched a personalized digital care path for kidney living candidates, which contains information about the donation process and facilitates the communication between clinicians, transplant coordinators, and patients, enabling telemedicine. The performance of this eHealth service has not yet been studied.
Objectives. to investigate living donor candidates' experience with the web portal Health Village and the digital care path for living donor candidates. The secondary aim is to investigate their attitude of living donor candidates to eHealth services.
Methods. A prospective cross sectional survey study. Participants will be all kidney donor candidates who have used the digital care path since its implementation in January 2019 up to 1.3.2021 (N=122). The surveys will include general data, the type of electronic devices in possession and the purpose of use. eHealth literacy will be assessed with the eHeals questionnaire. Platform's ease of use will be assessed with the System Usability Scale, and participants´ opinion about the digital path utility with six questions. These items will be answered with a Likert-scale. Finally, we added an open question for qualitative analysis.
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| survey study | Other | The surveys will include general data, the type of electronic devices in possession and the purpose of use. eHealth literacy will be assessed with the eHeals questionnaire. Platform's ease of use will be assessed with the System Usability Scale, and participants´ opinion about the digital path utility with six questions. These items will be answered with a Likert-scale. Finally, we added an open question for qualitative analysis. |
| Measure | Description | Time Frame |
|---|---|---|
| Patient´s experience | Measured with Likert scale | 4 months |
| Patient´s e-Health literature | Measured with Likert scale | 4 months |
| Measure | Description | Time Frame |
|---|---|---|
| Gender differences | to assess gender differences in the use of eHealth | 4 months |
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Inclusion Criteria:
Exclusion Criteria:
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All living donor candidates who contacted the living donor transplant coordinator, and were considered initially suitable for kidney donation.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Fernanda Ortiz, PhD, MD | Contact | +358504270795 | fernanda.ortiz@hus.fi | |
| Guido Giunti, PhD, MD | Contact | +358469213799 | guido.giunti@oulu.fi |
| Name | Affiliation | Role |
|---|---|---|
| Fernanda Ortiz, PhD, MD | Helsinki University Central Hospital | Principal Investigator |
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| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 38981119 | Derived | Ortiz F, Grasberger J, Ekstrand A, Helantera I, Giunti G. Interactive Health Technology Tool for Kidney Living Donor Assessment to Standardize the Informed Consent Process: Usability and Qualitative Content Analysis. JMIR Form Res. 2024 Jul 9;8:e47785. doi: 10.2196/47785. | |
| 34980611 | Derived | Ortiz F, Giunti G. Usability assessment of an interactive health technology for kidney living donors: protocol for a prospective cross-sectional survey. BMJ Open. 2022 Jan 3;12(1):e051166. doi: 10.1136/bmjopen-2021-051166. |
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In the near future, we plan to extend the use of the digital care path nationwide. This might allow the participation of other centers in the future.
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| ID | Term |
|---|---|
| D008137 | Longitudinal Studies |
| ID | Term |
|---|---|
| D015331 | Cohort Studies |
| D016021 | Epidemiologic Studies |
| D016020 | Epidemiologic Study Characteristics |
| D004812 | Epidemiologic Methods |
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| D008919 | Investigative Techniques |
| D017531 | Health Care Evaluation Mechanisms |
| D011787 | Quality of Health Care |
| D017530 | Health Care Quality, Access, and Evaluation |
| D011634 | Public Health |
| D004778 | Environment and Public Health |