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A feasibility controlled trial of an eight-session group intervention for siblings of children who have an Autism Spectrum Disorder (ASD).
Children will be recruited from a multi-academy trust of nine schools. Due to the on-going impact of COVID-19 restrictions, children will be allocated to the intervention condition (eight session support group) if they are physically attending school and to the control condition (receipt of a booklet) if they remain at home. Pre and post outcome measures will be completed by children and their parents in both research arms.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Sibling support group | Experimental | 8 session, tailored support group for siblings of children who have an ASD |
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| Booklet | Active Comparator | Control condition in which siblings of children who have an ASD will receive a tailored booklet to complete at home |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Sibling support group | Other | The intervention is a novel, 8 session sibling support group which has been created for the purpose of the study. |
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| Measure | Description | Time Frame |
|---|---|---|
| Change in Strengths & Difficulties Questionnaire (SDQ, Goodman et al., 2009) scores | Questionnaire used to measure effectiveness pre and post intervention or control condition. Lower scores indicate better outcome. | Pre (Week 1) and post (Week 6) intervention |
| Change in Paediatric Quality of Life Inventory (PedsQL V4.0; Varni, Seid & Kurtin, 2001) scores | Questionnaire used to measure effectiveness pre and post intervention or control condition. Higher scores indicate better outcome. | Pre (Week 1) and post (Week 6) intervention |
| Change in Knowledge of Autism Questionnaire (KAS; Ross & Cuskelly, 2006) scores | Questionnaire used to measure knowledge of autism pre and post intervention or control condition. Higher scores indicate better outcome. | Pre (Week 1) and post (Week 6) intervention |
| Change in Goal Based Outcomes (GBOs, Law & Jacob, 2015) scores Goal Based Outcomes (GBOs, Law & Jacob, 2015) | Questionnaire used to measure effectiveness pre and post intervention or control condition. Higher scores indicate better outcome. | Pre (Week 1) and post (Week 6) intervention |
| Measure | Description | Time Frame |
|---|---|---|
| Experience of Service Questionnaire (ESQ, Attride-Stirling, 2002) | Questionnaire used to measure experience post intervention or control condition. Higher scores indicate better outcome. | Post intervention (6 weeks after Time 1) |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Lucy Ms Watson | University of Surrey | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| The Howard Partnership Multi-Academy Trust | Leatherhead | KT24 5JR | United Kingdom |
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| Type | Date | Date Unknown |
|---|---|---|
| Release | Dec 18, 2024 | |
| Reset | Jan 29, 2025 |
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| Release Date | Unrelease Date | Unrelease Date Unknown | Reset Date | MCP Release Number |
|---|---|---|---|---|
| Dec 18, 2024 | Jan 29, 2025 |
| ID | Term |
|---|---|
| D000067877 | Autism Spectrum Disorder |
| ID | Term |
|---|---|
| D002659 | Child Development Disorders, Pervasive |
| D065886 | Neurodevelopmental Disorders |
| D001523 | Mental Disorders |
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| None - control condition | Other | The second arm of the study is a control condition in which participants will be given a tailored booklet to complete at home as it was deemed unethical to provide them with nothing. |
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