This study aims at evaluating the quality of life of patients with slowly progressive neuromuscular disorders who are dependant on mechanical ventilation (daily usage ≥ 16h).

Inclusion Criteria:

• Patients with slowly progressive neuromuscular disorder (NMD), non walking
• Patients dependant on mechanical ventilation (daily usage ≥ 16h) for at least 1 year before inclusion
• Aged ≥ 18 yo
• Consent for participation
• Affiliated to a social security regime

Exclusion Criteria:

• Patients with medically non-stable NMD: fever, acute respiratory infection, organ decompensation
• Patients with significant cognitive impairment (inability to read and/or incomprehension of questions)
• Patients with fast-evolving neuromuscular disease
• Patients declining to participate in the study
• Patients under guardianship and/or trusteeship
• Pregnant women

Patients with slowly progressive neuromuscular disease using home mechanical ventilation for at least 16 hours a day since at least one year. Patients may be ventilated via invasive or noninvasive interface.