Perceptions of the Clinical and Psychosocial Impact of Covid-19 in Patients With NMD

Perceptions of the Clinical and Psychosocial Impact of Covid-19 in Patients With Neuromuscular and Neurological Disorders

This study aims to evaluate perceived clinical and psychosocial experiences of patients and their families during the Covid-19 pandemic. it is important to understand the implications of the pandemic for this population, particularly given its likely protracted course, and resultant limitations to daily activities and clinical care. This will help clinicians plan support and adaptations to the services they provide in the medium to long term.

As above

Inclusion Criteria:

Adult group

• Patient over 16 years of age with a confirmed diagnosis of neuromuscular and/or neurological disorder
• Able and willing to provide informed consent

Paediatric group

• Parent of a patient under 16 years of age with a confirmed diagnosis of neuromuscular and/or neurological disorder
• Able and willing to provide informed consent

Exclusion Criteria:

• Unwilling for telephone questionnaire to be audio-recorded