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This study is being conducted to look at whether a group programme designed for parents of children with a diagnosis of Autism is effective. The programme is called The START Programme ©- as it aims to provide a Supportive and Therapeutic environment to help parents gain Acceptance and reach Resolution so that they can Take action to live more consistently with their values. The programme was developed by two psychologists in Longford/Westmeath, Ireland, Dr. Michelle Howard and Kara McDermott in 2013, because they identified a lack of therapeutic support for such parents. The programme draws on research and theory from a branch of therapy called Acceptance and Commitment Therapy, as well as some other psychological techniques. Individuals who agree to participate in the research will be assigned at random to the intervention or to a treatment as usual control condition. They will be asked to fill out 4 questionnaires, on 3 different occasions, with a 7 week gap between the first time and second time, and a 3 month gap between the second and third time.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Intervention group | Experimental | Group that receives the intervention |
|
| Control group | Active Comparator | Group that receives treatment as usual |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| START programme | Behavioral | Acceptance and Commitment Therapy based programme for parents of children with Autism |
|
| Measure | Description | Time Frame |
|---|---|---|
| Change in psychological flexibility | Measured using the Comprehensive assessment of Acceptance and Commitment Therapy Processes (CompACT) | Measured before first session of programme (Week 1), at the final session of the programme (Week 7), and at 3 month follow up (12 Weeks after Week 7) |
| Measure | Description | Time Frame |
|---|---|---|
| Parenting stress | Measured using The Autism Parenting Stress Index | Measured before first session of programme (Week 1), at the final session of the programme (Week 7), and at 3 month follow up (12 Weeks after Week 7) |
| Mental wellbeing |
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Inclusion Criteria:
Exclusion Criteria:
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| HSE Donegal | Donegal | Ireland | ||||
| HSE Longford/Westmeath |
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Participants will generate a Unique Identifier Code which will be used to identify their data across each time point, but will mask their allocation until all of the data is entered and analysed.
| Treatment as Usual | Behavioral | Treatment as usual in outpatient within outpatient psychology services |
|
Measured using The Warwick-Edinburgh Mental Wellbeing Scales (WEMWBS)
| Measured before first session of programme (Week 1), at the final session of the programme (Week 7), and at 3 month follow up (12 Weeks after Week 7) |
| Parent relationship | Parent Problem Checklist (PPC) | Measured before first session of programme (Week 1), at the final session of the programme (Week 7), and at 3 month follow up (12 Weeks after Week 7) |
| Longford |
| Ireland |
| ID | Term |
|---|---|
| D000067877 | Autism Spectrum Disorder |
| ID | Term |
|---|---|
| D002659 | Child Development Disorders, Pervasive |
| D065886 | Neurodevelopmental Disorders |
| D001523 | Mental Disorders |
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| ID | Term |
|---|---|
| D013812 | Therapeutics |
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