Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
| Name | Class |
|---|---|
| German Society for Pediatric Oncology and Hematology GPOH gGmbH | OTHER |
| Deutsche Gesellschaft für Kinderendokrinologie und Diabetologie (DGKED) | UNKNOWN |
| Deutsche Gesellschaft für Endokrinologie (DGE) | UNKNOWN |
Not provided
Not provided
Not provided
Not provided
Not provided
Not provided
KRANIOPHARYNGEOM Registry 2019 will prospectively collect and descriptively analyse data on diagnostics, treatment, and follow-up of patients with craniopharyngioma. In continuation of preceding studies also patients with xanthogranuloma, meningioma, pituitary adenoma, prolactinoma and cystic intracranial malformations will be registered.
Not provided
Not provided
Not provided
Not provided
Not provided
| Measure | Description | Time Frame |
|---|---|---|
| Overall Survival | Overall survival as measured by Kaplan Meyer analyses | 3 years follow-up |
| Progression-free Survival (PFS) | Progression-free survival as measured by Kaplan Meyer analyses | 3 years follow-up |
| Measure | Description | Time Frame |
|---|---|---|
| Quality of life (QoL) | Domains of the PedQol instrument (questionnaire for assessment of health-related QoL in childhood cancer patients. | 3 years follow-up |
Not provided
Inclusion Criteria:
Exclusion Criteria:
Not provided
Not provided
Newly diagnosed patients (≤ 18 years of age) with childhood-onset craniopharyngioma
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Hermann L Mueller, MD | Contact | +49 441 403 | 2013 | mueller.hermann@klinikum-oldenburg.de |
| Svenja Boekhoff | Contact | +49 441 403 | 2072 | boekhoff.svenja@klinikum-oldenburg.de |
Not provided
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Klinikum Oldenburg | Recruiting | Oldenburg | Lower Saxony | 26133 | Germany |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 40481916 | Derived | Sowithayasakul P, Beckhaus J, Ozyurt J, Bison B, Friedrich C, Muller HL. Prolactin serum concentrations in childhood-onset craniopharyngioma patients. J Endocrinol Invest. 2025 Sep;48(9):2041-2051. doi: 10.1007/s40618-025-02622-4. Epub 2025 Jun 7. | |
| 40108339 | Derived | Mann-Markutzyk LV, Beckhaus J, Ozyurt J, Mehren A, Friedrich C, Muller HL. Daytime sleepiness and health-related quality of life in patients with childhood-onset craniopharyngioma. Sci Rep. 2025 Mar 19;15(1):9407. doi: 10.1038/s41598-025-94384-5. |
Not provided
Not provided
Not provided
| Arbeitsgemeinschaft Pädiatrische Radioonkologie (APRO) | UNKNOWN |
| Deutschen Gesellschaft für Radioonkologie (DEGRO) | UNKNOWN |
Not provided
Not provided
Not provided
| 37402092 | Derived | Wagener K, Beckhaus J, Boekhoff S, Friedrich C, Muller HL. Sporadic and neurofibromatosis type 2-associated meningioma in children and adolescents. J Neurooncol. 2023 Jul;163(3):555-563. doi: 10.1007/s11060-023-04344-0. Epub 2023 Jul 4. |
| 36857103 | Derived | Beckhaus J, Friedrich C, Boekhoff S, Calaminus G, Bison B, Eveslage M, Timmermann B, Flitsch J, Muller HL. Outcome after pediatric craniopharyngioma: the role of age at diagnosis and hypothalamic damage. Eur J Endocrinol. 2023 Mar 2;188(3):lvad027. doi: 10.1093/ejendo/lvad027. |
| ID | Term |
|---|---|
| D003397 | Craniopharyngioma |
| D009765 | Obesity |
| D009369 | Neoplasms |
| ID | Term |
|---|---|
| D017599 | Neuroectodermal Tumors |
| D009373 | Neoplasms, Germ Cell and Embryonal |
| D009370 | Neoplasms by Histologic Type |
| D009380 | Neoplasms, Nerve Tissue |
| D050177 | Overweight |
| D044343 | Overnutrition |
| D009748 | Nutrition Disorders |
| D009750 | Nutritional and Metabolic Diseases |
| D001835 | Body Weight |
| D012816 | Signs and Symptoms |
| D013568 | Pathological Conditions, Signs and Symptoms |
Not provided
Not provided