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Giessen Pulmonary Hypertension Registry and Biobank
Long-term transplant-free survival and its determinants will be investigated in patients with Pulmonary Hypertension (diagnosed by right heart catheterization) within a prospective registry at a single referral center in Giessen, Germany.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Pulmonary arterial hypertension | Group 1 PH | ||
| Pulmonary hypertension due to left heart disease | Group 2 PH | ||
| Pulmonary hypertension due to lung disease | Group 3 PH | ||
| Chronic thromboembolic pulmonary hypertension | Group 4 PH | ||
| Miscellaneous | Group 5 PH | ||
| Exclusion PH | Patient with invasively excluded PH |
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| Measure | Description | Time Frame |
|---|---|---|
| Survival | Transplant-free survival of PH patients | Up to 20 years after enrollment |
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Inclusion Criteria:
Exclusion Criteria:
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Study population includes patients referred to our tertial PH expert center in Giessen with suspected PH.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Khodr Tello, MD | Contact | 0641/985-51250 | 57030 | khodr.tello@innere.med.uni-giessen.de |
| Name | Affiliation | Role |
|---|---|---|
| Khodr Tello, MD | University Clinics of Giessen and Marburg | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Department of Intermal Medicine - Universities of Giessen and Marburg Lung Center | Recruiting | Giessen | 35392 | Germany |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 28302503 | Result | Gall H, Felix JF, Schneck FK, Milger K, Sommer N, Voswinckel R, Franco OH, Hofman A, Schermuly RT, Weissmann N, Grimminger F, Seeger W, Ghofrani HA. The Giessen Pulmonary Hypertension Registry: Survival in pulmonary hypertension subgroups. J Heart Lung Transplant. 2017 Sep;36(9):957-967. doi: 10.1016/j.healun.2017.02.016. Epub 2017 Feb 17. |
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| ID | Term |
|---|---|
| D006976 | Hypertension, Pulmonary |
| ID | Term |
|---|---|
| D008171 | Lung Diseases |
| D012140 | Respiratory Tract Diseases |
| D006973 | Hypertension |
| D014652 | Vascular Diseases |
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| D002318 |
| Cardiovascular Diseases |