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Description of the characteristics of aquagenic pruritus expressed by patients suffering from myeloproliferative neoplasms.
Prospective work based on the distribution of a dedicated questionnaire.
Patients with myeloproliferative neoplasms identified and followed in French Hospitals. Patients could be followed for polycythemia vera or essential thrombocythemia or primary myelofibrosis.
Distribution of the questionnaire to each patient with myeloproliferative neoplasm (treated or not) suffering from aquagenic pruritus.
Analyse of each characteristic of the aquagenic pruritus by a statistician and publication at the end.
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| Measure | Description | Time Frame |
|---|---|---|
| Description of pruritus in patients with myeloproliferative neoplasms | Intensity of pruritus (visual analogic scale) | at the time of questionnaire completion (Day 0) |
| Measure | Description | Time Frame |
|---|---|---|
| Description of therapies used to treat pruritus | Name of drugs used | at the time of questionnaire completion (Day 0) |
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Inclusion Criteria:
Exclusion Criteria:
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Patients with one of three Philadelphia positive non-chromosome myeloproliferative neoplasms: polycythemia vera (PV), essential thrombocythemia (TE) or primary myelofibrosis (PMF).
And suffering (or having suffered) from aquagenic pruritus.
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| 05 | Lyon | Auvergne Rhônes-alpes | 69000 | France | ||
| 10 |
All collected data that underlie results in a publication
Data will be available beginning six months and ending five years following the publication
Data access requests will be rewiewed by internal committee of Brest UH. Requestors will be required to sign and complete a data access agreement.
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| ID | Term |
|---|---|
| D011537 | Pruritus |
| D009196 | Myeloproliferative Disorders |
| ID | Term |
|---|---|
| D012871 | Skin Diseases |
| D017437 | Skin and Connective Tissue Diseases |
| D012877 | Skin Manifestations |
| D012816 | Signs and Symptoms |
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| Quimper |
| Brestagne |
| 29000 |
| France |
| 11 | Morlaix | Brittany Region | 29600 | France |
| 09 | Saint-Brieuc | Brittany Region | 22000 | France |
| 07 | Saint-Louis | Grand Est | 68300 | France |
| 03 | Annecy | Haute-Savoie | 74000 | France |
| 04 | Roubaix | Hauts-de-France | 59100 | France |
| 08 | Rochefort | New Aquitaine | 17300 | France |
| 06 | Angers | Pays de la Loire Region | 49000 | France |
| 02 | Villejuif | Val-de-marne | 94800 | France |
| 01 | Brest | 29609 | France |
| D013568 | Pathological Conditions, Signs and Symptoms |
| D001855 | Bone Marrow Diseases |
| D006402 | Hematologic Diseases |
| D006425 | Hemic and Lymphatic Diseases |