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The study uses a mixed method study to evaluate wether the use of the indicators of the Quality of end-of-life cancer care, developed by Earle et al [Earle JCO 2003; DOI: 10.1200/JCO.2003.03.059] would be relevant and measurable in France. The qualitative part of study was designed to investigate the representations of quality by face-to face interviews with family carer of recently deceased cancer patients, and with their oncologists, and nurses. The quantitative part of the study, consisted in a decedents case series analysis, diagnosed with advanced cancer and followed up in 5 centers. Data on trajectory of care were collected from different complementary sources associating national mortality data, hospital activity data, and health records.
The study was approved by the French data protection authority (CNIL) number 611273.
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| Measure | Description | Time Frame |
|---|---|---|
| Use of emergency services within last 30 days before death | Through study completion, up to 1 year |
| Measure | Description | Time Frame |
|---|---|---|
| Patients received chemotherapy in the last 14 days of life | Through study completion, up to 1 year | |
| Location of death | Through study completion, up to 1 year | |
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Inclusion criteria
Exclusion Criteria:
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Patients deceased in 2010, among all patients identified in the DRG database of the 5 participating center with a diagnosis of metastatic cancer, during at least one stay between Oct 1st, 2009 and Dec 31, 2010.
200 patients per study center were randomly selected for the study.
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| APHP Hôpital Cochin | Paris | France | ||||
| APHP Hôpital Européen Georges Pompidou |
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| ID | Term |
|---|---|
| D009369 | Neoplasms |
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| Among patients who died in palliative care unit, those who died within 3 days after admission |
| Through study completion, up to 1 year |
| Admission in intensive care unit within last 30 days before death | Through study completion, up to 1 year |
| Among patients with pain relief opioid treatment, those with combined short term and long acting opioid orders | Through study completion, up to 1 year |
| Paris |
| France |
| APHP Hôpital Henri Mondor | Paris | France |
| Institut Gustave Roussy | Villejuif | France |
| Institut Curie | Paris | Île-de-France Region | 75005 | France |