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| ID | Type | Description | Link |
|---|---|---|---|
| PHRQ0904 | Other Identifier | The French Ministry of Health |
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The purpose of this study is to elaborate a multi-dimensional indicator of the quality in palliative care for patients of end-of-life.
The study will, as secondary objectives:
A multicentric study aims on quality of palliative care and will be conducted in three types of 7 palliative care settings: two hospices, two hospital-based palliative care units and three medical units where a mobile palliative care team intervenes.
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| Measure | Description | Time Frame |
|---|---|---|
| Questionnaire for patients | A questionnaire has been elaborated beforehand by the study will be answered by patients in order to evaluate quality such as reliability, dimensionality and validity against criterion. | From date of enrollment until the date of first documented leaving from hospital or date of death, whichever came first, up to 2 years |
| Indicator for medical files | The indicators have been defined by the study, in order to evaluate quality of medical files, such as completeness and discriminatory capacity. | At enrollment |
| Indicator for caregivers | In order to evaluate quality such as reliability and dimensionality, a questionnaire will be answered by caregivers: - the Nursing Stress Scale (NSS). | From date of enrollment until the date of receiving questionnaire returned by caregiver, up to 2 years |
| Questionnaire for families | A questionnaire has been elaborated, will be answered by patients' families. | From date of enrollment until the date of receiving questionnaire sent by family, up to 2 years |
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Inclusion Criteria:
Exclusion Criteria:
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Study population:
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| Name | Affiliation | Role |
|---|---|---|
| Frédéric GUIRIMAND, MD | Maison Médicale Jeanne Garnier | Study Chair |
| Philippe Aegerter, MD, PhD | Hôpital Ambroise Paré, AP-HP | Study Director |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Maison Médicale Jeanne Garnier | Paris | Île-de-France Region | 75015 | France |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 30744627 | Derived | Guirimand F, Martel-Samb P, Guy-Coichard C, Picard S, Devalois B, Copel L, Abel A, Ghadi V; QUALI-PALLI group and Philippe Aegerter. Development and validation of a French questionnaire concerning patients' perspectives of the quality of palliative care: the QUALI-PALLI-Patient. BMC Palliat Care. 2019 Feb 11;18(1):19. doi: 10.1186/s12904-019-0403-z. |
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| ID | Term |
|---|---|
| D003643 | Death |
| ID | Term |
|---|---|
| D010335 | Pathologic Processes |
| D013568 | Pathological Conditions, Signs and Symptoms |
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