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The overall purpose is to study quality in patient education by means of the patients' self-rated enablement. Specific aims are:
To assess the validity of the patient enablement instrument in relation to self-efficacy and empowerment; To investigate if patient enablement can be effective in identifying which patients would benefit the most from patient education; To study if patient enablement has any relation to self-efficacy, function or self-rated health; To analyze if patient enablement has a causal effect on health care consumption; To evaluate whether patient education is a cost-effective intervention. The project is a longitudinal study, including patients from a patient education programme for osteoarthritis in primary health care. Data consist of patient reported outcome measures and health care consumption. Cost-effectiveness and cost-utility analysis will be used. Inclusion of patients will start August 2016. Analyses of data and manuscript writing will be performed in 2018-2019. Researchers included are from primary health care settings and researchers in the field of OA, patient education and health economy. Our increasingly older and more inactive population will raise huge demands on the health care. The importance of optimizing treatments that are available in primary health care cannot be underestimated. The project will contribute with important knowledge about the patient's own process of getting well.
The project is a longitudinal study, including patients who are referred to patient education for osteoarthritis in primary health care and is planned to follow the patients one year before baseline measures as well as one year after baseline measures.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Patient education for osteoarthritis | The intervention in the education program consists of three group lessons of about 90 minutes each where information about ethiology, risk factors, treatment and coping strategies concerning OA is included. The first two lessons are held by a physiotherapist and the third by a so-called expert patient that is a person with OA who shares his or her experiences of how to live with the disease. After the intervention patients are able to choose if they want to exercise at home or in a group, supervised by a physiotherapist. |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Patient education for osteoarthritis | Other | Group sessions and optional supervised exercise. |
|
| Measure | Description | Time Frame |
|---|---|---|
| Patient enablement | Questionnaire | directly after intervention |
| Measure | Description | Time Frame |
|---|---|---|
| Arthritis Self Efficacy Scale | Questionnaire | before intervention, directly after intervention and at 3 and 9 month follow up |
| Measure | Description | Time Frame |
|---|---|---|
| Swedish Rheumatic Empowerment Scale | Questionnaire | Before intervention, directly after intervention and at 3 and 9 month follow up |
| EQ5D index | Questionnaire |
Inclusion Criteria:
Exclusion Criteria:
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| Name | Affiliation | Role |
|---|---|---|
| Eva Ekvall Hansson, Ass prof | Lund University | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Primary Health Care | Malmö | SE20502 | Sweden |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 20969809 | Background | Hansson EE, Jonsson-Lundgren M, Ronnheden AM, Sorensson E, Bjarnung A, Dahlberg LE. Effect of an education programme for patients with osteoarthritis in primary care--a randomized controlled trial. BMC Musculoskelet Disord. 2010 Oct 25;11:244. doi: 10.1186/1471-2474-11-244. | |
| 37735517 | Derived | Akesson KS, Sunden A, Stigmar K, Eek F, Pawlikowska T, Hansson EE. Empowerment and enablement and their associations with change in health-related quality of life after a supported osteoarthritis self-management programme - a prospective observational study. Arch Physiother. 2023 Sep 22;13(1):18. doi: 10.1186/s40945-023-00172-7. |
| Label | URL |
|---|---|
| BOA registry | View source |
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| ID | Term |
|---|---|
| D010003 | Osteoarthritis |
| ID | Term |
|---|---|
| D001168 | Arthritis |
| D007592 | Joint Diseases |
| D009140 | Musculoskeletal Diseases |
| D012216 | Rheumatic Diseases |
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| ID | Term |
|---|---|
| D010353 | Patient Education as Topic |
| ID | Term |
|---|---|
| D006266 | Health Education |
| D011314 | Preventive Health Services |
| D006296 | Health Services |
| D005159 | Health Care Facilities Workforce and Services |
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| Before intervention, directly after intervention and at 3 and 9 month follow up |
| Health care consumption | Linked register data from the Skåne Health Care Register | 12 months before baseline and 12 months after baseline |
| Sick leave | Linked register data from the Swedish Social Insurance Agency | 12 months before baseline and 12 months after baseline |
| EQ5D Health barometer | visual analogue scale | Before intervention, directly after intervention and at 3 and 9 month follow up |
| 35676666 | Derived | Akesson KS, Sunden A, Stigmar K, Fagerstrom C, Pawlikowska T, Ekvall Hansson E. Enablement and empowerment among patients participating in a supported osteoarthritis self-management programme - a prospective observational study. BMC Musculoskelet Disord. 2022 Jun 8;23(1):555. doi: 10.1186/s12891-022-05457-9. |