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ClinicalTrials.gov ID

NCT02838927

Lead Sponsor

European Georges Pompidou HospitalOTHER

Overall Status

Recruiting

Study Type

Observational

Enrollment

3,000Estimated

Last Update Posted

Sep 24, 2024Actual

Start Date

Jul 2016Actual

Primary Completion Date

Sep 2030Estimated

Completion Date

Sep 2031Estimated

Official Title

Epi-Hypo: Survey on Epidemiology of Hypoparathyroidism in France

Brief Summary

Very few data has been published on the epidemiology of hypoparathyroidism worldwide: none exists specifically for France. Hypoparathyroidism could led to complications. Here, the investigators plan to collect data about both epidemiology, medication and complication of hypoparathyroidism in France.

Detailed Description

Very few data has been published on the epidemiology of hypoparathyroidism worldwide. None exists specifically in France. Hypoparathyroidism could led to complications: e.g. symptomatic hypocalcemia, calcifications (brain, eye and other soft tissues), nephrolithiasis/nephrocalcinosis, renal insufficiency. Here,the investigators plan to collect data about both epidemiology, medication and complication of hypoparathyroidism in France.

• Hypoparathyroidism

• No intervention

Ages Eligible for Study

Child (0-17)Adult (18-64)Older Adult (65+)

Sexes Eligible for Study

All

Accepts Healthy Volunteers

No

Eligibility Criteria

Inclusion Criteria:

• patient fro whom chronic hypoparathyroidism is diagnosed
• patient living in France

Exclusion Criteria:

• patient who does not want his data to be collected in this registry
• pseudo-hypoparathyroidism
• acute hypoparathyroidism

Observational Model

Cohort

Time Perspective

Prospective

Lead Sponsor

European Georges Pompidou HospitalOTHER

Collaborators

Oscar - Filière Santé Maladies RaresUNKNOWN

stephane.castillo-ros@wanadoo.fr33562051340

dr.valerie.aubert@orange.fr33387358132

benjamin.savenkoff@gmail.com33387345100

docteur.navarranne-roumec@orange.fr

mat.jamme@gmail.com800-555-5555