Italian Network MDS Registry

Rete Italiana Dei Registri Regionali Delle Sindromi Mielodisplastiche (MDS)

Epidemiological data collection of adult patients affected by myelodysplastic syndrome (MDS) newly diagnosed.

Development of an Italian regional registries MDS network using the same electronic case report form for data storage, with the following broad aims:

• Ability to aggregate and process anonymous epidemiological data collected by individual regional registers;
• Ability to aggregate the available data with those of other international registries existing.

Inclusion Criteria:

• New diagnosis of MDS

Exclusion Criteria:

• Patient who refuse the signature of informed consent