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The Participation and Environment Measure for Children and Youth (PEM-CY) is the first instrument that combines parental assessment of children's participation in home, school, and community activities with qualities of each environment that are perceived to support or hinder participation. This combined format may help to clarify the relative impact of environmental factors (including the natural and built environment), compared to personal factors, on children's participation in specific settings. The aim of this study was to examine reliability and validity of Turkish version of the Participation and Environment Measure for Children and Youth (PEM-CY).
The International Classification of Functioning, Disability and Health-Child and Youth Version (ICF-CY; WHO 2007) is designed to guide assessment and intervention efforts to minimize disparities in children's participation. Participation is defined in the ICF-CY as ''involvement in life situations'' and is further conceptualized as a multidimensional construct with both objective (e.g., frequency) and subjective (e.g., satisfaction) dimensions. Participation is linked to contextual factors, including: 1) personal factors (child personal factors such as child's age, gender, and functional abilities; family demographic factors); and 2) features of environments (physical (natural and built), social, attitudinal, and institutional factors, and availability and adequacy of resources). Since its adoption in the ICF-CY, an increasing number of participation measures have been developed. Among these measures, the Participation and Environment Measure for Children and Youth (PEM-CY) is the first instrument that combines parental assessment of children's participation in home, school, and community activities with qualities of each environment that are perceived to support or hinder participation. This combined format may help to clarify the relative impact of environmental factors (including the natural and built environment), compared to personal factors, on children's participation in specific settings.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Participation | Parents will complete the PEM-CY (Participation and Environment Measure for Children and Youth). |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Participation | Other | The PEM-CY will be field-tested with a sample of 650 caregivers of children with and without disabilities residing in the Turkey. |
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| Measure | Description | Time Frame |
|---|---|---|
| Participation and Environment Measure for Children and Youth with and without disability as a measure of participation | The PEM-CY will be applied for once for 500 participants. • A comparison will be made between results of children with disabilities and healthy children to test the validity of the Turkish version of PEM-CY. | 1 year |
| Measure | Description | Time Frame |
|---|---|---|
| Variation in participation and environment measure for children and youth with and without disability | Investigate the intraclass correlation coefficient of Turkish version of PEM-CY was used to calculate test retest reliability. PEM-CY was administered twice within a period of 1 week to participants in order to test the test-retest reliability of the scale. | 1 year |
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Inclusion Criteria:
Exclusion Criteria:
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Caregivers of children with and without disabilities
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| Name | Affiliation | Role |
|---|---|---|
| Ozgun Kaya Kara, PhD | Akdeniz University | Study Director |
| Duygu Turker, PhD | Saglik Bilimleri Universitesi Gulhane Tip Fakultesi | Principal Investigator |
| Koray Kara, Assist. Prof | Antalya Training and Research Hospital | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Akdeniz University | Antalya | 07058 | Turkey (Türkiye) |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 24670061 | Background | Khetani MA, Cliff AB, Schelly C, Daunhauer L, Anaby D. Decisional Support Algorithm for Collaborative Care Planning using the Participation and Environment Measure for Children and Youth (PEM-CY): A Mixed Methods Study. Phys Occup Ther Pediatr. 2014 Mar 26. doi: 10.3109/01942638.2014.899288. Online ahead of print. | |
| 22014322 | Background |
| Label | URL |
|---|---|
| website | View source |
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| Correlation between different items of Participation and Environment Measure for Children and Youth with and without disability | Investigate the internal consistency reliability of Turkish version of PEM-CY by using Cronbach's alpha coefficient. | 1 year |
| Coster W, Bedell G, Law M, Khetani MA, Teplicky R, Liljenquist K, Gleason K, Kao YC. Psychometric evaluation of the Participation and Environment Measure for Children and Youth. Dev Med Child Neurol. 2011 Nov;53(11):1030-7. doi: 10.1111/j.1469-8749.2011.04094.x. |
| 23763254 | Background | Coster W, Law M, Bedell G, Liljenquist K, Kao YC, Khetani M, Teplicky R. School participation, supports and barriers of students with and without disabilities. Child Care Health Dev. 2013 Jul;39(4):535-43. doi: 10.1111/cch.12046. |
| 23851418 | Background | Chien CW, Rodger S, Copley J, Skorka K. Comparative content review of children's participation measures using the International Classification of Functioning, Disability and Health-Children and Youth. Arch Phys Med Rehabil. 2014 Jan;95(1):141-52. doi: 10.1016/j.apmr.2013.06.027. Epub 2013 Jul 12. |