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Family-centred care (FCS) is considered the best practice in providing rehabilitation to children with disabilities and special needs. Family-centred care has been described as a partnership approach to healthcare decision making. As a philosophy of healthcare, today many multidisciplinary healthcare facilities have organized their services according to a family-centred approach. TheMeasure of Processes of Care (MPOC) is the most widely used instrument to assess parents' self-reported experiences of family-centred behaviours of rehabilitation services providers. The aim of this study is to translate the scale to Turkish and to determine validity and reliability of The Measure of Processes of Care (MPOC 56- 20- SP)
The MPOC is a questionnaire designed to find out what parents of children with disabilities think of the services they and their children receive and how these services affect their psychosocial outcome. MPOC exists in two versions: the 56-item version was published in 1995 and the MPOC-20 in 2004. The20-item version was developed due to disadvantage of the longer version, because its completion can be very time consuming and the consequences of low respondent percentages . King and colleagues assert that the56-item MPOC is useful for research, while the MPOC-20 is better applied as a measure of parents' perceptions of the elements of FCS. The 20 items in the short version are distributed among the same five scales as in the MPOC-56. This ensures that the MPOC-56/20 captures aspects of care and services that have most importance for parents. The items are included in one of the following five scales:
1 Enabling and partnership; 2 Providing general information; 3 Providing specific information about the child; 4 Coordinated and comprehensive care; 5 Respectful and supportive care.
The Measure of Processes of Care for Service Providers (MPOC-SP) was developed to assess FCS from the perspective of professionals. The MPOC-SP has also been used in many different studies with different populations.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Participation | Parents will complete the The Measure of Processes of Care 56- 20 (MPOC 56-20) questionary Service providers will complete The Measure of Processes of Care for Service Providers (MPOC-SP) |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Participation | Other | The mpoc 56 and mpoc 20 will be field-tested with a sample of 300 parents of children with disabilities residing in the Turkey. Professionals working with children with disabilities will be assessed with MPOC SP questionnaires |
| Measure | Description | Time Frame |
|---|---|---|
| The Measure of Processes of Care (MPOC- 56) | Assessing of the participation level of children. The Measure of processes of care-56 (MPOC 56) will be applied for once for 300 participants. The MPOC consists of 56 questions, which are related to important aspects of care that are closely related with satisfaction of parents. The 56 items are divided into five factorially defined subscales: Enabling and Partnership (EP), ProvidingGeneral Information (PGI), Providing Specific Informationabout the Child (PSI), Coordinated and Comprehensive Care(CCC) and Respectful and Supportive Care (RS). The items are answered on a seven-point scale ranging from 7 ('to a very greatextent') to 1 ('not at all'), with a 0 for 'Not applicable'. A higherscore reflects a more favourable judgement of the care process. | MPOC 56 was administered twice within a period of 1 week to participants in order to test the test-retest reliability of the scale. |
| The Measure of Processes of Care 20 (MPOC- 20) | The measure of processes of care consists of 20 questions, which are related to important aspects of care that are closely related with satisfaction of parents. The 20 items are divided into five factorially defined subscales: Enabling and Partnership (EP), ProvidingGeneral Information (PGI), Providing Specific Informationabout the Child (PSI), Coordinated and Comprehensive Care(CCC) and Respectful and Supportive Care (RS). The items are answered on a seven-point scale ranging from 7 ('to a very greatextent') to 1 ('not at all'), with a 0 for 'Not applicable'. A higherscore reflects a more favourable judgement of the care process. | MPOC 20 was administered twice within a period of 1 week to participants in order to test the test-retest reliability of the scale. |
| The Measure of Processes of Care for services providers (MPOC- SP) | Self-assessment tool for pediatric service providers that measures the extent to which the services they provide are family-centred. The Measure of Processes of Care for Service Providers consists of 27 items categorized into four scales: (1) Showing Interpersonal Sensitivity (SIS), (2) Providing General Information (PGI), (3) Communicating Specific Information about the Child (CSI), and (4) Treating People Respectfully (TPR), .All response options are labelled, ranging from 1 ('never') to 7 ('to a great extent'). A higherscore reflects a more favourable judgement of the care process. |
| Measure | Description | Time Frame |
|---|---|---|
| Child Health Questionnaire - Parent Form 50 | Assessing health-related quality of life of children | At baseline] |
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Inclusion Criteria:
Exclusion Criteria:
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The subjects will be recruited from children who lives in Turkey and, attend special education centers and hospitals.
| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Duygu Türker, PhD, pt | Contact | +905304602723 | duyguturker@yahoo.com | |
| Cemil Özal, MSc, pt | Contact | +905376054373 | cemilozal@hotmail.com |
| Name | Affiliation | Role |
|---|---|---|
| Mintaze Kerem Günel, prof.dr | Hacettepe University | Study Chair |
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| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 16441851 | Background | Dyke P, Buttigieg P, Blackmore AM, Ghose A. Use of the measure of process of care for families (MPOC-56) and service providers (MPOC-SP) to evaluate family-centred services in a paediatric disability setting. Child Care Health Dev. 2006 Mar;32(2):167-76. doi: 10.1111/j.1365-2214.2006.00604.x. | |
| 21198778 | Background |
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| ID | Term |
|---|---|
| D002547 | Cerebral Palsy |
| D009136 | Muscular Dystrophies |
| D000067877 | Autism Spectrum Disorder |
| D000070642 | Brain Injuries, Traumatic |
| D004314 | Down Syndrome |
| D002658 | Developmental Disabilities |
| ID | Term |
|---|---|
| D001925 | Brain Damage, Chronic |
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
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| MPOC SP was administered twice within a period of 1 week to participants in order to test the test-retest reliability of the scale. |
| Hagen AK, Bjorbaekmo WS. Parents evaluation of the processes of care in child rehabilitation: a reliability study of the Norwegian translation of MPOC-20. Child Care Health Dev. 2012 Jan;38(1):48-53. doi: 10.1111/j.1365-2214.2010.01192.x. Epub 2010 Dec 28. |
| 14961865 | Background | Bjerre IM, Larsson M, Franzon AM, Nilsson MS, Stromberg G, Westbom LM. Measure of Processes of Care (MPOC) applied to measure parent's perception of the habilitation process in Sweden. Child Care Health Dev. 2004 Mar;30(2):123-30. doi: 10.1111/j.1365-2214.2003.00403.x. |
| D020966 | Muscular Disorders, Atrophic |
| D009135 | Muscular Diseases |
| D009140 | Musculoskeletal Diseases |
| D009468 | Neuromuscular Diseases |
| D030342 | Genetic Diseases, Inborn |
| D009358 | Congenital, Hereditary, and Neonatal Diseases and Abnormalities |
| D002659 | Child Development Disorders, Pervasive |
| D065886 | Neurodevelopmental Disorders |
| D001523 | Mental Disorders |
| D001930 | Brain Injuries |
| D006259 | Craniocerebral Trauma |
| D020196 | Trauma, Nervous System |
| D014947 | Wounds and Injuries |
| D008607 | Intellectual Disability |
| D019954 | Neurobehavioral Manifestations |
| D009461 | Neurologic Manifestations |
| D000015 | Abnormalities, Multiple |
| D000013 | Congenital Abnormalities |
| D025063 | Chromosome Disorders |