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The overall goal of this project is to identify, assess and longitudinally monitor subjects who are interested in participating in brain research. Participants will enroll through the website, BrainHealthRegistry.org, and provide informed consent prior to any study activities. The website will collect a variety of information, including participants' overall health, memory complaints, family history of dementia and Alzheimer's disease (AD), mood status, sleep, diet, and exercise-all through self-reported online questionnaires. Participants will also be ask to take online cognitive tests, and to return to the website at regular intervals, to complete follow-up questionnaires and neuropsychological assessments. Everyone over the age of 18 is welcome to participate. To join the Brain Health Registry, please visit www.BrainHealthRegistry.org.
Through advertisement and community outreach, potential participants will be directed to the website, BrainHealthRegistry.org. The overall goal of this project is to identify, assess and longitudinally monitor subjects who are interested in participating in brain research. Participants will enroll through the website, BrainHealthRegistry.org, and provide informed consent prior to any study activities.
The website will include:
The Registry will be a large, online database of volunteers who are interested in participating in neuroscience research. While anyone over the age of 18 is welcome to join the Registry, the intent is to concentrate all efforts on enrolling participants age 55 years and older. It will consist of online tools and databases, which are HIPAA-compliant and secure.
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| Measure | Description | Time Frame |
|---|---|---|
| Alzheimer's Disease | The overall goal of The Brain Health Registry is to facilitate and accelerate treatments for diseases which affect the brain. | 10 years |
| Measure | Description | Time Frame |
|---|---|---|
| Neurodegenerative Diseases | The main goal of this project is to promote healthy brain aging through the prevention of Alzheimer's disease and other neurodegenerative diseases such as Parkinson's disease, depression, stroke and other conditions that affect brain function in older adults. Our broader goal is to develop an innovative model for subject recruitment and clinical trials of treatments for brain disorders across the age spectrum. |
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Inclusion Criteria:
Exclusion Criteria:
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The Registry is a large, online database of volunteers who would like to participate in clinical trials and research. Anyone over the age of 18 is welcome to join the Registry, and the intent is to concentrate all efforts on enrolling participants age 55 years and older.
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| Name | Affiliation | Role |
|---|---|---|
| Michael Weiner, MD | University of California, San Francisco | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| BrainHealthRegistry.org | San Francisco | California | 94143 | United States |
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| Label | URL |
|---|---|
| Brain Health Registry: How it works; Join | View source |
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| ID | Term |
|---|---|
| D019636 | Neurodegenerative Diseases |
| D000544 | Alzheimer Disease |
| D010300 | Parkinson Disease |
| D003704 | Dementia |
| D020521 | Stroke |
| D013313 | Stress Disorders, Post-Traumatic |
| D009103 | Multiple Sclerosis |
| ID | Term |
|---|---|
| D009422 | Nervous System Diseases |
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D024801 | Tauopathies |
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| 10 years |
| D019965 |
| Neurocognitive Disorders |
| D001523 | Mental Disorders |
| D020734 | Parkinsonian Disorders |
| D001480 | Basal Ganglia Diseases |
| D009069 | Movement Disorders |
| D000080874 | Synucleinopathies |
| D002561 | Cerebrovascular Disorders |
| D014652 | Vascular Diseases |
| D002318 | Cardiovascular Diseases |
| D040921 | Stress Disorders, Traumatic |
| D000068099 | Trauma and Stressor Related Disorders |
| D020278 | Demyelinating Autoimmune Diseases, CNS |
| D020274 | Autoimmune Diseases of the Nervous System |
| D003711 | Demyelinating Diseases |
| D001327 | Autoimmune Diseases |
| D007154 | Immune System Diseases |