Alzheimer's Prevention Registry: A Program to Accelerate... | NCT02022943

Studies
Alzheimer's Prevention Registry: A Program to Accelerate Enrollment Into Studies

NCT02022943

Sponsor

Banner Health

Status

Recruiting

Last Update Posted

Dec 16, 2025Actual

Enrollment

500,000Estimated

Phase

Not provided

Conditions

Alzheimer's Disease
Dementia

Interventions

Not provided

Countries

United States

Protocol Section

Identification Module Status Module Sponsor/Collaborators Module Oversight Module Description Module Conditions Module Design Module Arms/Interventions Module Outcomes Module Eligibility Module Contacts/Locations Module References Module IPD Sharing Statement Module

Results Section

Participant Flow Module Baseline Characteristics Module Outcome Measures Module Adverse Events Module More Info Module

Annotation Section

Annotation Module

Document Section

Large Document Module

Derived Section

Miscellaneous Info Module Condition Browse Module Intervention Browse Module

Protocol Section

Identification Module

NCT ID

Results Section

No data available

No data is available for this block.

Annotation Section

No data available

No data is available for this block.

Document Section

No data available

No data is available for this block.

Derived Section

Miscellaneous Info Module

Version Holder

Status Module

Record Verification Date

Dec 2025

Overall Recruitment Status or Expanded Access Status

Recruiting

Last Known Status

Not provided

Delayed Posting

Not provided

Why Stopped

Not provided

Expanded Access Info

Start Date

May 2012

Primary Completion Date

Jan 2030Estimated

Completion Date

Jan 2030Estimated

First Submitted Date

Dec 23, 2013

First Submission Date that Met QC Criteria

Dec 23, 2013

First Posted Date

Dec 30, 2013Estimated

Results Waived

Not provided

Results First Submitted Date

Not provided

Results First Submitted that Met QC Criteria

Not provided

Results First Posted Date

Not provided

Certification/Extension (aka Delayed Results) First Submitted Date

Not provided

Certification/Extension First Submitted that Passed QC Review

Not provided

Certification/Extension First Posted Date

Not provided

Last Update Submitted Date

Dec 8, 2025

Last Update Posted Date

Dec 16, 2025Actual

Oversight Module

Has Data Monitoring Committee (DMC)

Is FDA Regulated Drug

Not provided

Is FDA Regulated Device

Not provided

Is Unapproved Device

Not provided

Pediatric Postmarket Surveillance of a Device Product

Not provided

Product Exported from US

Not provided

FDAAA801 Violation

Not provided

Description Module

Brief Summary

The Alzheimer's Prevention Registry (www.endALZnow.org) will collect contact and demographic information on individuals. The objective is to provide information the latest news and advances in Alzheimer's prevention research, and to inform enrollees about research studies in their community. Enrolled individuals will receive regular email communications. As research studies become available, individuals will be notified via email with information as to how proceed should they be interested. Registry enrollees are under no obligation to participate in a research study. Study opportunities may include surveys, healthy lifestyle interventions (e.g., diet, exercise), memory & thinking tests, brain scans, and investigational drug trials. To join the Registry, please visit www.endALZnow.org

Detailed Description

Not provided

Design Module

Study Type

Observational

Number of References to an Expanded Access Study

Not provided

Expanded Access Types

Not provided

Patient Registry

Yes

Target Follow-Up Duration

20 Years

Phases

Not provided

Interventional Study Design

Allocation

Not provided

Intervention Model

Biospecimen

No data available

No data is available for this block.

Enrollment

500,000Estimated

Outcomes Module

Primary Outcomes

Measure	Description	Time Frame
Number of individuals enrolled into Alzheimer's prevention studies		16 years

Secondary Outcomes

Measure	Description	Time Frame
Number of individuals referred to Alzheimer's prevention research studies / sites		16 years

Other Outcomes

Measure	Description	Time Frame
Total number enrolled into the Alzheimer's Prevention Registry		16 years

Eligibility Module

Eligibility Criteria

Inclusion Criteria:

Must be able to accept the Alzheimer's Prevention Registry website terms and conditions

Exclusion Criteria:

None

Accepts Healthy Volunteers

Yes

Sex

All

Sex/Gender Based

Not provided

Sex/Gender Description

Not provided

Minimum Age

18 Years

Maximum Age

110 Years

Standard Ages

AdultOlder Adult

Study Population

Anyone who meets entry criteria is eligible to join the Registry.

Sampling Method

Non-Probability Sample

Contacts/Locations Module

Central Contacts

Name	Role	Phone	Extension	Email
Nellie High, MA	Contact	1-888-STOP-ALZ		info@endALZnow.org

Overall Officials

Name	Affiliation	Role
Jessica Langbaum, PhD	Banner Alzheimer's Institute	Principal Investigator

Locations

Facility	Status	City	State	ZIP	Country	Contacts
Banner Alzheimer's Institute	Recruiting	Phoenix	Arizona	85006	United States

References Module

Citations

PubMed Identifier	Type	Citation	Retractions
32920626	Result	Langbaum JB, High N, Nichols J, Kettenhoven C, Reiman EM, Tariot PN. The Alzheimer's Prevention Registry: A Large Internet-Based Participant Recruitment Registry to Accelerate Referrals to Alzheimer's-Focused Studies. J Prev Alzheimers Dis. 2020;7(4):242-250. doi: 10.14283/jpad.2020.31.

ID	Term
D000544	Alzheimer Disease
D003704	Dementia

ID	Term
D001927	Brain Diseases
D002493	Central Nervous System Diseases
D009422	Nervous System Diseases
D024801	Tauopathies