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| ID | Type | Description | Link |
|---|---|---|---|
| SISRA | Other Identifier | SISRA |
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French cohorte about polyposis digestive diseases
Family Adenomatous Polyposis APC and MYH Genes Peutz Jeghers Disease Cowden Disease Festooned polyposis Juvenile polyposis Hyperplastic polyposis
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| digestive polyposis | Family adenomatous polyposis (APC or MYH genes) Peutz Jeghers Disease Cowden Disease Festooned Polyposis Juvenile Polyposis Hyperplastic Polyposis |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Procedure surgery behavioral and genetic diagnosis | Other | Observational Study |
| |
| Measure | Description | Time Frame |
|---|---|---|
| genetic diagnosis or over 50 polyps in the stomach in the duodenum or in the colon | 10 years |
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Inclusion Criteria:
Exclusion Criteria:
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Digestive Polyposis Cohort
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| Name | Affiliation | Role |
|---|---|---|
| jean christophe saurin, msd | HEH Hospital | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Hopital Edouard Herriot | Recruiting | Lyon | Auvergne-Rhône-Alpes | 69000 | France |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 38555039 | Derived | Le Bras P, Cauchin E, De Lange G, Moussata D, Garcia GA, Queneherve L, Saurin JC, Coron E. Impact of Endoscopic Treatment in Severe Duodenal Polyposis: A National Study in Familial Adenomatous Polyposis Patients. Clin Gastroenterol Hepatol. 2024 Sep;22(9):1839-1846.e1. doi: 10.1016/j.cgh.2024.03.007. Epub 2024 Mar 28. |
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Genetic Diagnostic
| quality of life after different type of surgery |
| Procedure |
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