Interstitial Lung Disease Questionnaire

Questionnaire Study for Patients With Interstitial Lung Disease

1. To evaluate the health status of patients with Interstitial Lung Disease (ILD), and how this varies between subgroups of ILD.
2. To investigate the prevalence of symptoms, anxiety, depression, and sleep-disordered breathing within ILD patient population.
3. To assess the economic impact of ILD.
4. To understand how self-aware ILD patients are regarding their treatment/management.
5. To compare the demographic details, including smoking status and occupational history, of patients with interstitial lung disease

Primary endpoint

• Health status in the target populations, as determined by the K-BILD questionnaire.

Secondary endpoints -

• Severity of dyspnoea suffered by patients
• Prevalence of anxiety and depression
• Prevalence of sleep-disordered breathing symptoms
• Degree of self-awareness displayed by patients
• The costs associated with ILD from a patient and healthcare perspective.
• Demographic details

Inclusion Criteria:

• Male or female
• Age greater than 18 years of age
• Any smoking status
• Diagnosis of Interstitial Lung Disease as defined below
• Full pulmonary lung function tests and routine immunological tests undertaken within 6 months of entry into study

Exclusion Criteria:

• Unable to give consent to take part