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| ID | Type | Description | Link |
|---|---|---|---|
| UNCDRE | Other Grant/Funding Number | University of North Carolina Department of Anesthesiology |
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Purpose:
-To evaluate the peri-operative communication between families and the pediatric cardiac surgery team.
Method:
-In this study the investigators plan to utilize structured interview and survey of parents/legal guardians and health care providers of children undergoing cardiac surgery in the United States of America.
Every day clinicians face challenges when attempting to negotiate their way through dialogues with families whose children require surgical intervention in the near future. The area of clinician-patient communication with pediatric families is under-researched and highlights a pressing clinical problem. There are several adult studies that describe the content and nature of patient-physician communications at the time of cardiac surgery. However, there are no studies that evaluate the communications between nursing, physicians, and pediatric patient's families at the time of cardiac surgery. Further knowledge in this area is valuable in that a disparity between the these groups can lead to medical error, damage the clinician-patient relationship and provide grounds for dissatisfaction, complaints, or claim. This research will provide insight into what patient's families value in their communications with the medical team and assist the medical community in better meeting our children's families needs.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Pediatric Cardiothoracic Team | This group consists of members of the cardiothoracic surgery team: The attending physician, the fellow physician, the nurses, and the physician assistants. | ||
| Critical Care Team | This group consists of the nurses and physicians who work in the pediatric intensive care unit and the neonatal intensive care unit caring for patients who require cardiothoracic surgery. | ||
| Subspecialty Team | This group consists of physicians and nurses from pediatric cardiology and pediatric anesthesiology who care for children who require cardiothoracic surgery. | ||
| Parent | This group consists of the parent or legal guardian of the pediatric patient who requires cardiothoracic surgery. |
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| Measure | Description | Time Frame |
|---|---|---|
| Peri-operative risk information | Parental and provider assessment of the content and nature of communications in the peri-operative time period. Specifically, the quantity and type of risk information required before consenting for surgery. | 1 week |
| Measure | Description | Time Frame |
|---|---|---|
| Informed decisions | Parental and provider assessment of the content and nature of communications in the peri-operative time period. Specifically, the family's ability to make informed decisions. | 1 week |
| Trust in the medical team |
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Inclusion Criteria:
Exclusion Criteria:
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The study population will be selected from a tertiary care academic children's hospital including:
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| Name | Affiliation | Role |
|---|---|---|
| Cherissa C Hanson, MD | University of North Carolina, Chapel Hill | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| The University of North Carolina at Chapel Hill | Chapel Hill | North Carolina | 27599 | United States |
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| ID | Term |
|---|---|
| D003142 | Communication |
| ID | Term |
|---|---|
| D001519 | Behavior |
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Parental and provider assessment of the content and nature of communications in the peri-operative time period. Specifically, the families trust in the medical team.
| 1 week |
| Desire for disclosure of peri-operative complications | Parental and provider assessment of the content and nature of communications in the peri-operative time period. Specifically, families desire for disclosure of peri-operative complications. | 1 week |