A 3-year, Prospective, Non-interventional, Multicenter Re... | NCT01220115 | Trialant

A 3-year, Prospective, Non-interventional, Multicenter Re... | NCT01220115 | Trialant

Arms/Interventions Module

Arm Groups

Label	Type	Description	Intervention Names
No treatment		Patients aged 2 to less than 12
No treatment patients aged 12 to less than 18		Patients aged 12 to less than 18
No treatment Patients greater than 18 years		patients greater than 18 years

Outcomes Module

Secondary Outcomes

Measure	Description	Time Frame
Data collection	Collection of the following data:Current therapies used for the treatment of SCD Current transfusion practices, Difference in treatments between pediatric and adult patients, Use of chelation therapies, Frequency and types of crises including Frequency of hospitalizations, Incidence of end organ damage (caridac, renal, pulmonary,liver), Quality of life assessed by PedsQL TM Pediatric Quality of Life Inventory for patients 2- <18 years old and SF-36® Health Survey for patients 18 years old and older

Contacts/Locations Module

Ancestor Terms

ID	Term
D000745	Anemia, Hemolytic, Congenital
D000743	Anemia, Hemolytic
D000740	Anemia
D006402	Hematologic Diseases
D006425	Hemic and Lymphatic Diseases
D006453	Hemoglobinopathies
D030342	Genetic Diseases, Inborn
D009358	Congenital, Hereditary, and Neonatal Diseases and Abnormalities