Traumatic brain injury (TBI) can have long-term and chronic effects on an individual's physical, social, and emotional health, impacting quality of life and the ability to engage in meaningful life roles. Despite the potential for long-term effects, much of the care for individuals with TBI is front-loaded in the weeks to months post-injury. Self-management and self-management training are key components of long-term care for many chronic health conditions, but they are not standard parts of care for individuals with TBI.
In this study the investigators will address two objectives: 1) identify self-management priorities from the perspectives of individuals with chronic TBI, families, and health care providers and 2) pilot test an existing virtual community-based self-management training program (the Chronic Disease Self-Management Program (CDMSP)), to a) evaluate changes in quality of life, self-management self-efficacy, and other patient-reported outcomes before and after participating in the training, and b) identify barriers and facilitators to participating in community-based self-management training.
Inclusion Criteria:
Exclusion Criteria:
• Aged <18 at the time of their first TBI
eaevans@bu.edu(617) 353 7493
Individuals enrolled in this arm will participate in a community-based self management training program
A Health & Wellness Intervention for Individuals With Traumatic Brain Injury (TBI)
Safe@Home: A Self-Management Program for Individuals With TBI and Their Families
Comparing Approaches to Helping People With Chronic Traumatic Brain Injury Manage Their Health Care
A Health and Wellness Lifestyle Program to Support Community-Dwelling Persons With Traumatic Brain Injury
MENTOR Wellness Program
Improving Outcomes After Traumatic Injury: A Goal Management Approach
Traumatic Brain Injury; Needs and Treatment Options in the Chronic Phase
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