This qualitative study will explore how family-centred care is understood and experienced in adult inpatient medical wards in the UK. Family-centred care involves including a patient's family in care and discussions where appropriate. Although family involvement can improve communication, emotional support and shared decision-making, it may also create ethical challenges where family wishes differ from the patient's preferences or clinical judgement.
The study will recruit 30 adults at Milton Keynes University Hospital: 10 patients admitted to an internal medicine ward, 10 family members of patients admitted to an internal medicine ward and 10 registered nurses working on an internal medicine ward. Each participant will take part in one semi-structured interview lasting approximately 30-60 minutes, conducted face to face, by telephone or by video call.
The study is based on the expectation that patients, family members and nurses may experience family involvement differently, and that cultural values may influence how family-centred care is applied in practice. The interviews will explore issues including privacy, informed consent, patient autonomy and decision-making. The UK findings will also be compared with findings from an identical study being conducted in Israel to examine how cultural and value-based contexts may affect family involvement in hospital care.
The findings may help identify practical communication approaches for delivering culturally sensitive family-centred care while protecting patients' rights and supporting nurses' professional responsibilities.
Inclusion Criteria:
Age:
- 18 years or older
Role: Must fall into one of the following categories:
Capacity:
- Able and willing to provide informed consent
Exclusion Criteria:
Louise.Mew@mkuh.nhs.uk
Patients admitted to an internal medicine ward
Family members of patients admitted to an internal medicine ward
Registered nurses working on an internal medicine ward
Teena.Babu@mkuh.nhs.uk01908997557
Family Presence on Multidisciplinary Patient Care Rounds in ICU
Family Interventions iN Dementia Mental Health Environments
The Family-ICU Trial
The VIP3 (Very Old Intensive Care Patients) Study: Family Involvement in Treatment Decisions for Old ICU Patients
Patient- and Family-centred Care in the Adult Intensive Care Unit: a Feasibility Study
Family Participation in CICU Rounds: RCT
Family Participation in Bangladesh Hospital Care
Family Support Intervention in Intensive Care Units