The goal of this clinical trial is to learn more about the home-based epilepsy self-management program, HOBSCOTCH, for improving cognitive function (thinking and memory) and quality of life specifically in young adults, ages 18 - 29 years, who have epilepsy. It will also learn if a modification of the program for youth with epilepsy, ages 13 - 17, improves thinking and memory and quality of life and reduces stress for their parents.
Researchers will enroll 260 young adults with epilepsy and 40 youth with epilepsy and their parent or guardian. Researchers will compare responses to questionnaires and surveys before and after participation in the HOBSCOTCH program to see if thinking, memory and quality of life have improved for young adults and youth with epilepsy and to see if parents have improved quality of life as well.
Participants will:
There are no study visits to a medical center. HOBSCOTCH is a virtual or telehealth intervention.
Inclusion Criteria:
Inclusion Criteria for Young Adults with Epilepsy (YAWE) and Youth with Epilepsy (YWE):
Inclusion Criteria for Parent of Youth with Epilepsy (YWE):
Exclusion Criteria:
wren.m.kaden@hitchcock.org603-650-4225
Participants will receive the HOBSCOTCH (ages 18-29) or HOBSCOTCH-YOUTH (ages 13 -17) program consisting of 1:1 sessions delivered once per week including: * 1 pre-HOBSCOTCH Session (on webcam or by phone); * 1 educational session (on webcam); * 6 HOBSCOTCH intervention sessions (webcam or by phone); * 1 wrap-up and maintenance planning session.
trina.k.dawson@hitchcock.org603-650-4225
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