To develop and refine a disease-specific quality of life (QoL) questionnaire for children with bronchiectasis, informed by qualitative interviews with affected children, young people, and their parents.
The paediatric bronchiectasis- specific quality of life (PQOL-B) questionnaire will be developed across four demographics:
Children aged 8-12 years
Young people aged 13 -17 years
Parent-proxy for 2-5years
Parent-proxy for 6-12years
Inclusion Criteria:
Patient, child and young persons, aged 8 -17 years with bronchiectasis diagnosed on CT scan
Exclusion Criteria:
Child under 8 years with bronchiectasis for patient direct participation
Birmingham, B4 6NH, United Kingdom
Long-Term Burden of BPD and Health-Related Quality of Life (BronQ Family)
Clinimetric Properties of Outcome Measures in Bronchiectasis in the UK
Development of Health-related Quality of Life Instrument for Patients With Cystinosis
Valuation of Quality of Life in Children With Asthma
Validation of the EQ-5D-Y-3L and EQ-5D-Y-5L for Paediatric Patients in China
French Linguistic and Metric Validations of Parent-proxy QOL Chronic Cough Specific Questionnaire (PC-QOL)
Evaluation of the Quality of Life of Patients With DBB With the Installation of OPEP
National Validation and Sensitivity to Change of the SAQ