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The goal of this single-arm feasibility study is to learn whether group music therapy is feasible in a rural area for people living with dementia and their companions. The main questions are:
Participants living with dementia and their companions will be asked to take part in 10-weeks of music therapy in the community. Before and after each music therapy session, they will be asked to answer an easy-read satisfaction survey to gather information on the 'in the moment' experiences of music therapy.
Participants will also be asked to complete surveys on quality of life, loneliness, depression and well-being on three occasions:
After music therapy, participants will also be asked to
If a person does not have the capacity to answer any questions, their companion will be asked to provide the information on behalf of the individual living with dementia.
Support in Sound is a 14-week research project for people living with dementia and their carers in Tarporley and the surrounding villages. The project explores how community-based group music therapy may support quality of life, social connection, depression and well-being for participants.
Research suggests that music therapy can have positive emotional and social benefits for people living with dementia. A study found that group music therapy significantly reduced anxiety and depression compared to usual care, with improvements still present three months later, suggesting possible longer-term mental health benefits. A Cochrane review also found that music-based therapeutic interventions may improve social behaviour, depressive symptoms, and overall behavioural symptoms in people with dementia. In addition, music therapy may help facilitate positive emotions and strengthen connections with significant others.
However, less is known about the practicalities, accessibility, and acceptability of delivering group music therapy in rural communities. People living in rural areas may have fewer opportunities to access support groups, wellbeing activities and meet with peers than those living in towns and cities. There is also limited research exploring the role of peer support and shared social experiences within group music therapy for people living with dementia and their carers.
Participants will be recruited from Tarporley and the surrounding villages in line with supporting the health and well-being of local residents living with dementia and their companions in the community. Recruitment posters will be advertised around the village and circulated with care groups in the area. Consent will be obtained from caregivers and individuals living with dementia if they have capacity to do so. Where a person does not have capacity, a consultee will complete a declaration form on behalf of the person living with dementia. Demographic data will be collected before the study commences.
The project consists of 2 weeks for baseline data collection, 10-weeks of group music therapy including data collection during week 5 and 2 weeks of data collection at the end of the study.
The music therapy will be delivered by a HCPC registered music therapist with experience of working with people living with dementia. The sessions will include singing, listening to music, playing with instruments and using music to enable social engagement. Sessions will include an opportunity for peers to socialise over tea, coffee and cake before and after each music therapy session. The team aims to recruit between 6 - 7 dyads.
Feasibility data will be collected to understand the practicality and acceptability of the study using the following data:
The potential preliminary changes in health and well-being of both persons living with dementia and their companions will be measured using the following data:
All participants will be asked to complete each of the outcome measures before music therapy, during week 5 of music therapy and at the end of music therapy to measure potential changes during the course of participating in music therapy.
Additional information will be requested to:
Descriptive data will be analysed and there will be a repeated measures analysis. Interview data will be analysed qualitatively.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Music therapy group | Experimental | Group music therapy will be delivered to participants for 10-weeks. |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Group music therapy | Behavioral | Group music therapy will be held in the local community of Tarporley for 10 weeks. The music therapy will be delivered by a HCPC registered music therapist with experience of working with people living with dementia. Each session will be held for 1.5 hours: consisting of 1 hour of music therapy and the remaining time available for participants to have tea, coffee and cake providing an opportunity to talk and socialise. All participants will be provided with a name label before each session. The one hour of weekly music therapy will consist of singing, music listening, playing with instruments and interactive music making opportunities. |
| Measure | Description | Time Frame |
|---|---|---|
| Acceptability and practicality of the study | The following feasibility measures will be collected to assess the acceptability and practicality of the study: number of participants who were recruited, adhered and retained to the study. Numerical levels of satisfaction throughout the duration of the study and qualitative details on feasibility from participants. | From enrolment to the end of the 14-week research programme |
| Measure | Description | Time Frame |
|---|---|---|
| Dementia quality of life measure: DEMQOL | Quality of life of participants living with dementia will be measured using the DEMQOL questionnaire or the DEMQOL proxy questionnaire completed by their companion if a person does not have capacity to answer for themselves. Scoring: DEMQOL: (minimum score) 28-112 (maximum score); higher score = better quality of life. DEMQOL-Proxy: (minimum score) 31-124 (maximum score); higher =better quality of life as rated by a caregiver/proxy). |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Kiera Kenny, PhD | Contact | +447979154869 | kk79@aru.ac.uk |
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Tarporley Community Centre | Chester | United Kingdom |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 37255758 | Background | Hussain B, Mirza M, Baines R, Burns L, Stevens S, Asthana S, Chatterjee A. Loneliness and social networks of older adults in rural communities: a narrative synthesis systematic review. Front Public Health. 2023 May 15;11:1113864. doi: 10.3389/fpubh.2023.1113864. eCollection 2023. | |
| 34585627 | Background | Madso KG, Molde H, Hynninen KM, Nordhus IH. Observing Music Therapy in Dementia: Repeated Single-case Studies Assessing Well-being and Sociable Interaction. Clin Gerontol. 2022 Jul-Sep;45(4):968-982. doi: 10.1080/07317115.2021.1978121. Epub 2021 Sep 29. |
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All data collected including demographics, participants and information sheets, feasibility data, questionnaire data and interview data will be shared within the research team.
In the first month of the study up until the research has been published ~ 2 years.
The research team will be able to access all IPD throughout the study. The data will be stored on a password protected OneDrive folder. The folder will be shared with the research team only and they will have the password to access the folder. There will be one Excel sheet with participants names and demographic information, where a unique ID code will be assigned to each participant. All survey and interview data will be labelled with the participant's unique code rather their name.
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| ID | Term |
|---|---|
| D003704 | Dementia |
| ID | Term |
|---|---|
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
| D019965 | Neurocognitive Disorders |
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|
| Up to two weeks before the music therapy programme starts, again at week 5 and up to two weeks after music therapy programme. |
| UCLA 3-item Loneliness Scale | Loneliness will be measured of both participants living with dementia and their companions using the UCLA 3-item Loneliness Scale. If a person does not have capacity, their companion will complete this on behalf of the person living with dementia. Scoring: 3 (minimum score) - 9 (maximum score) with higher scores indicating greater loneliness. | Up to two weeks before the music therapy programme starts, again at week 5 and up to two weeks after music therapy programme. |
| Short Geriatric Depression Scale (GDS 15) | Depression levels will be measured using the Short Geriatric Depression Scale for both individuals living with dementia and their companions for those over 65 years of age. If a person does not have capacity, their companion will complete this on behalf of the person living with dementia. Scoring: 0 (minimum score) - 15 (maximum score) with higher scores indicating worse depressive symptoms | Up to two weeks before the music therapy programme starts, again at week 5 and up to two weeks after music therapy programme. |
| Short Warwick-Edinburgh Mental Wellbeing Scale | Well-being will be measured using the Short Warwick-Edinburgh Mental Wellbeing Scale for both person living with dementia and their companions. If a person does not have capacity, their companion will complete this on behalf of the person living with dementia. Scoring: 7 (minimum score) - 35 (maximum score) with higher scores indicating better well-being. | Up to two weeks before the music therapy programme starts, again at week 5 and up to two weeks after music therapy programme. |
| 40049590 | Background | van der Steen JT, van der Wouden JC, Methley AM, Smaling HJA, Vink AC, Bruinsma MS. Music-based therapeutic interventions for people with dementia. Cochrane Database Syst Rev. 2025 Mar 7;3(3):CD003477. doi: 10.1002/14651858.CD003477.pub5. |
| 39260989 | Background | Feng X, Dang W, Apuke OD. How does group music therapy help in combating the anxiety and depression of dementia patients? A quasi-experimental investigation. Arch Psychiatr Nurs. 2024 Oct;52:83-88. doi: 10.1016/j.apnu.2024.07.010. Epub 2024 Jul 8. |
| D001523 | Mental Disorders |