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The goal of this National Institutes of Health (NIH) Stage 1a study is to develop and pilot test a research- and community-informed financial counseling and advocacy (FCA) intervention for dementia family caregivers in early and middle adulthood. The main question it aims to answer is:
Is a research- and community-informed financial counseling and advocacy intervention usable, feasible and acceptable for dementia family caregivers in early and middle adulthood?
Participants will engage in a four-week single group financial counseling and advocacy intervention and complete pre- and post-intervention measures addressing financial well-being, caregiver strain, workplace productivity, and flourishing along with usability, acceptability, and feasibility measures.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Financial Counseling and Advocacy Arm | Experimental |
|
| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Financial Counseling and Advocacy | Behavioral | Financial assessment, coaching, self-advocacy support, referrals, educational toolkit, and follow-up |
|
| Measure | Description | Time Frame |
|---|---|---|
| Feasibility of Intervention Measure (FIM) | Higher score indicates greater feasibility (Range 4-20) | After intervention completion at 4 weeks |
| Acceptability of Intervention Measure (AIM) | Higher score indicates greater acceptability (Range 4-20) | After intervention completion at 4 weeks |
| Study Usability | Higher score indicates greater usability (Range: 5-25) | After intervention completion at 4 weeks |
| Measure | Description | Time Frame |
|---|---|---|
| Modified Caregiver Strain Index | Higher score indicates higher caregiver strain (Range: 0-26) | At baseline and after intervention completion at 4 weeks |
| Workplace Productivity and Activity Impairment |
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Inclusion Criteria:
Exclusion Criteria:
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| Name | Role | Phone | Extension | |
|---|---|---|---|---|
| Megan Thomas Hebdon | Contact | (801) 581-3414 | meg.hebdon@utah.edu |
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| University of Utah College of Nursing | Recruiting | Salt Lake City | Utah | 84112 | United States |
IPD sharing was not part of the IRB protocol. This is a small scale pilot study, and procedures and findings will be reported in full.
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| ID | Term |
|---|---|
| D003704 | Dementia |
| ID | Term |
|---|---|
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
| D019965 | Neurocognitive Disorders |
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Higher score indicates greater presenteeism, absenteeism, work productivity loss, and activity impairment (Range: 0-100)
| At baseline and after intervention completion at 4 weeks |
| Consumer Financial Protection Bureau Financial Well-Being Scale | Higher score indicates greater financial well-being (Range: 0-40) | At baseline and after intervention completion at 4 weeks |
| Harvard Flourishing Measure | Higher score indicates greater flourishing in the following domains: Happiness and Life Satisfaction, Mental and Physical Health, Meaning and Purpose, Character and Virtue, and Close Social Relationships, and Financial and Material Stability (Range: 0-10 for each subscale and overall scale score) | At baseline and after intervention completion at 4 weeks |
| D001523 | Mental Disorders |