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This study aims to investigate the relationships between pain intensity, caregiver burden, and quality of life in mothers of children with disabilities. Pain intensity, caregiver burden, and physical and mental quality of life will be evaluated using validated outcome measures. The study also aims to determine independent factors associated with quality of life in caregivers.
Mothers of children with disabilities are exposed to substantial physical and psychological demands due to long-term caregiving responsibilities. These challenges may negatively affect pain levels, caregiver burden, and quality of life. However, the relationships between these factors have not been sufficiently investigated.
This cross-sectional observational study aims to examine the associations between pain intensity, caregiver burden, and quality of life in mothers of children with disabilities. Pain intensity will be assessed using the Numeric Pain Scale (NPS), caregiver burden using the Zarit Caregiver Burden Scale, and quality of life using the Short Form-12 (SF-12), including physical and mental component scores. Pearson correlation and multiple linear regression analyses will be performed to determine the relationships between variables and identify independent determinants of quality of life.
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| Not Applicable (N/A) | Other | Not Applicable (N/A) |
| Measure | Description | Time Frame |
|---|---|---|
| Zarit Caregiver Burden Scale | The Zarit Caregiver Burden Scale is a self-reported questionnaire used to evaluate the level of burden experienced by caregivers. Higher scores indicate greater caregiver burden. | baseline |
| Numeric Pain Scale (NPS) | The Numeric Pain Scale is an 11-point scale ranging from 0 (no pain) to 10 (worst imaginable pain) used to assess pain intensity. | baseline |
| Short Form-12 (SF-12) | The SF-12 is a validated health-related quality of life questionnaire consisting of physical and mental component scores. Higher scores indicate better quality of life. | baseline |
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Inclusion Criteria:
Exclusion Criteria:
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The study population consisted of mothers of children with disabilities who were providing long-term caregiving support. Participants were recruited voluntarily and included mothers of children diagnosed with conditions such as cerebral palsy, spina bifida, autism spectrum disorder, hydrocephalus, and other neurological or developmental disorders. Only mothers aged 18 years and older who were able to understand and complete the assessment forms were included in the study.
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| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Üsküdar University | Istanbul | Uskudar | 34662 | Turkey (Türkiye) |
| PubMed Identifier | Type | Citation | Retractions |
|---|---|---|---|
| 15930188 | Result | Raina P, O'Donnell M, Rosenbaum P, Brehaut J, Walter SD, Russell D, Swinton M, Zhu B, Wood E. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005 Jun;115(6):e626-36. doi: 10.1542/peds.2004-1689. | |
| 24618967 | Result | Adelman RD, Tmanova LL, Delgado D, Dion S, Lachs MS. Caregiver burden: a clinical review. JAMA. 2014 Mar 12;311(10):1052-60. doi: 10.1001/jama.2014.304. |
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| ID | Term |
|---|---|
| D000084802 | Caregiver Burden |
| D010146 | Pain |
| ID | Term |
|---|---|
| D013315 | Stress, Psychological |
| D001526 | Behavioral Symptoms |
| D001519 | Behavior |
| D009461 | Neurologic Manifestations |
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| 27969083 | Result | Isa SN, Ishak I, Ab Rahman A, Mohd Saat NZ, Che Din N, Lubis SH, Mohd Ismail MF. Health and quality of life among the caregivers of children with disabilities: A review of literature. Asian J Psychiatr. 2016 Oct;23:71-77. doi: 10.1016/j.ajp.2016.07.007. Epub 2016 Jul 16. |
| D012816 |
| Signs and Symptoms |
| D013568 | Pathological Conditions, Signs and Symptoms |